Category Archives: Stories

Domestic Engineer, Family, Funny story, Grown-up Stuff, Stories, Writing

The Walking Washer

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Let me tell you a story. Once upon a time there was a woman named Molly. Molly was a wife and a mother, and she took great pride in the work she did to keep her home and everything in it fresh and clean. A good portion of that task involves laundry. Thankfully, Molly had a machine that did all the washing for her, and another machine to dry everything. However, her washing machine was getting up in years and needed to be replaced. Molly and her husband, Marvin, drove over to the local hardware store and looked at all the fancy washing machines for sale. They read reviews of each machine and compared prices and features. After hemming and hawing, they settled on just the right machine for their home. They made their purchase, scheduled the delivery, and went home happy.

When the day of delivery came, Molly and Marvin were ecstatic. It’s new washer day! Hurray! Marvin left for work, and Molly stayed to wait for the delivery truck to arrive with her new washing machine. Soon, the truck arrived. Two lovely gentlemen stepped out of the truck and, after confirming this was indeed what Molly had purchased, they proceeded to remove the old washing machine and replace it with the new one. It was such a quick and easy process, Molly was overjoyed. She sent the delivery men on their merry way and got to working on her inaugural load in the new machine. Since this was a larger model than the previous one, she was very interested to see how it handled washing pillows. She threw a couple in the washer and let it do its work. She was so tired from the excitement of the morning she decided to take a nap. She shut the door to the laundry room and retreated to the living room to rest. 

When Molly woke from her nap she remembered right away that she had a load of laundry in her new machine. It had been about an hour and a half, so she knew it would be done by now. She bounced up the stairs to the laundry room and grabbed hold of the doorknob and turned. She pushed and immediately felt a THUD. Her son was home, he must have heard her coming and hid in the laundry room to play a trick on her. “Leonard, that isn’t funny, let me in.” She pushed on the door again. THUD. There was no give at all when she pushed. Something solid was blocking this door. 

Molly’s mind raced as she contemplated what could be causing her to be locked out of her own laundry room. Panic set in. What if? What if they were never able to access this room? All the towels, bedding, purses, and not to mention the water heater! As she panicked, it dawned on her that the only thing solid enough to block the door from opening was the new washer. The new washing machine must have walked its way forward as it spun dry the pillows, blocking the door from opening inward. 

Molly immediately called Marvin, explaining the predicament and ensuring he would be coming home promptly. Marvin was very handy, he would surely be able to solve this problem. When Marvin arrived home, he wasted no time getting to work. After a complete inspection of what he was dealing with, he went to the garage to grab the necessary tools. Molly stood in the kitchen, washing dishes and fiddling around to keep herself distracted while Marvin worked. He was making a lot of noise! Lots of loud banging, sporadic curses, a few trips back to the garage for tools. It felt just like the scene in A Christmas Story when the father is fixing the furnace. Eventually, Marvin was able to get the machine moved far enough back to open the door, though he had to break the feet of the machine in the process. 

Molly and Marvin stood outside, staring into their laundry room, collectively sighing in relief that it could have been worse. There could have been a flood! (Wink, wink) Seriously though, Molly’s propensity for home disasters is reaching epic proportions. She could benefit from some adult supervision.

The New Washer, still prone to walking when overloaded.

This folks, is a true story, though the names were changed to protect the innocent. Ha. Ha. We went that night to Lowe’s to order a replacement washer, and after a month of waiting, we finally have our new washer. The old one still washed fine with the broken feet, so it was not a hardship at all. However, even the new one has the tendency to walk if its unable to balance the load. The policy in our home is to never close the door when you are running a load in the washer. Maybe someday I’ll have a cute sign made to hang above it, I don’t know.

I hope you’ve enjoyed story time! Stay tuned, because this was fun to write and you may see more from me down the road. Shalom, my people.

Disability, Faith, God speaks, Photos, Stories

Sweet reminders

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Sometimes God sends me little messages to remind me He loves me and that He’s thinking of me. Usually it’s a bunny running across my path while I’m running in the neighborhood, or a deer stopping long enough and close enough for me to see him. I get giddy when I happen to see these things.

Today I spotted this heart shaped water spot on the driveway after taking the trash bin to the curb. Only today I felt less giddy and more comforted. Like God knew I was having a rough couple of days and could use the reminder that He’s always – still – here with me. This disability sh** is a full time job, man. And this week I am feeling beat down. Tired. So this little “love note” was a welcome distraction and comfort.

2 Corinthians 4:8-9 ESV “8 We are afflicted in every way, but not crushed; perplexed, but not driven to despair; 9 persecuted, but not forsaken; struck down, but not destroyed;”

Cochlear implant, Deafness, Family, Food, Funny story, Marriage, Memories, Photos, Piper, Punky, Stories

Flooding Anniversaries

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I had originally started this post around the new year, and forgot about it. As we are coming up on the anniversary of the events, I thought it would be a good time to finish the story. Also, a disclaimer: the photos included here lack captions because 1) I couldn’t figure out how to add captions and 2) with my vision I’m not even entirely sure what’s in each photo. So I apologize to all the other visually impaired readers out there.

In April of 2021, my husband Mike and I were looking forward to celebrating our 22nd wedding anniversary with a weekend trip up north (Up North being a big deal in Michigan). We had planned to leave Friday afternoon, while the kids were still at school, and Grandma was to come and stay the weekend with them.

On this fateful Friday morning, I was frantically awoken by my husband. When I opened my eyes I could sense there was an emergency but could not tell what. I hurried to put on my cochlear implants, and when I did Mike handed me a stack of towels and said “You work up here, I’ll work downstairs.” A few short steps from my bed, and it did not take me long to realize that the floor was soaked. Our bathroom sink had been left running when I got up several hours earlier to use the toilet. I can’t tell you how many times in the past I had gotten up in the middle of the night to go the bathroom and left the water running. Only every other time it had happened, my husband was awake enough to hear it and made sure I got back up to turn the water off. This time that did not happen. The water had been running for several hours, and because it was a slow drain, the water quickly overflowed. The water had spread from our master bathroom, to the carpeted hallway, and through the floor to the main floor ceiling to the kitchen. And then through the kitchen floor to the basement ceiling.

I was devastated. Stunned. In disbelief. In a whirlwind of activity we managed to send the kids off to school and get everything cleaned up the best we could. It was still very early in the morning so while we waited to talk with an insurance agent, I sat on my husband’s lap and sobbed into his shoulder. Not only was our trip cancelled, but I couldn’t believe the mass destruction I had caused to our home. Mike had nothing but compassion for me. He had been angry all of 3 seconds when he discovered the damage, but from every moment thereafter he was in problem solver mode. He kept saying this could be a blessing in disguise. I had always hated the look of our kitchen, and now we would get to pick out our own cabinets, countertops, floors, etc. It could be fun!

I wouldn’t say the process was fun, however it was nice to discover I did have opinions when it came to the kitchen and bathroom designs. And there were a million little decisions we had to make together, so it gave us some good practice as a married couple. After 22 years of marriage it was nice to find we could work out our differences and make compromises without killing each other.

When the restoration crew came to assess the damage they brought very loud drying machines and put them on all 3 floors of the house. They had to cut holes in the kitchen and basement ceilings to get them dried. They ripped out our soaked kitchen and bathroom cabinets, and with them the countertops they were holding up. They put up plastic sheets as barriers because they had detected mold in the kitchen. It was a mess.

We got to work right away at choosing replacement materials, but there were supply chain issues so it did take longer than we had hoped for. We still had use of our fridge and stove, but no place to prepare food or wash dishes, so we lived on fast food for the next several months.

Oh, did I mention that I had already started training for my first marathon at this point? Yep. Marathon training on a fast food diet? Not ideal. But our family got really good at knowing how to get the best deals at all the fast food restaurants. Biggie Bags at Wendy’s, Five Dollar Boxes at Taco Bell, all the value menus. It was fun! (She said, facetiously.)

Anyway, all was restored by early September, just days before my marathon, and it was beautiful. I was so happy to have my kitchen back, I swore to never talk about hating to cook every again. I am grateful for the privilege of having a kitchen to prepare food in.

We put a motion sensor faucet in our bathroom, so that this would never happen again. It took a little getting used to, but it’s been effective; I’ve never left my bathroom faucet running because I’m not able to. I seem to remember one of our kids asking around this time, “why don’t we put one in the kids bathroom too?” And the reply being that there was no reason to because Mom never uses that bathroom. Well, never say never…

Fast forward to April of 2022, almost a year following the major flood. I was blasting my music through my cochlear implants, drowning out all other sounds, and doing a bunch of power cleaning. I noticed the dryer was quite dusty, so I grabbed a washcloth and ran to the nearest bathroom (the kids bathroom, which is the other full upstairs bathroom) to wet the cloth and wipe down the dryer. I continued my work, flittering around the house. My daughter had come home from school, used the small bathroom just off the kitchen, and when she walked out of the bathroom noticed a problem. She hurried upstairs to let me know, “Mom, the kitchen ceiling is leaking!”

I had NO idea what could be causing that but I zoomed into crisis mode. I handed her a bunch of towels and told her to grab a large bowl from the kitchen cabinets, put it under the leak, and start drying the floor (our practically brand new kitchen floor!). I was frantic, not knowing what to do, so I called my husband. He calmly walked me through turning the water off in the house and then gave suggestions for where to check for the source of the leak. I walked upstairs and opened the door to the kid’s bathroom (why was the door shut anyway?) and walked into a cloud of steam and water dripping off the countertop. It was then that I realized I had left the water running after wetting the cloth to clean the dryer. I could not believe it. I had done it again. Thankfully my daughter had caught it in time and the damage was not as severe, but the damage to my ego was just as devastating the second time around, if not more so. I had come to learn after the first flood that it was actually quite common, for people to leave faucets running and flood their homes. I never learned the statistics for two-time offenders but I was sure it was more rare.

The ironic thing is, we had planned a trip for our 23rd anniversary, since we didn’t get to take it the year before. And when I asked Grandma to come stay with the kids, I told her – jokingly – I wouldn’t flood the house this time. And then, of course, I did. Thankfully it happened a few weeks before the trip so we were still able to go. And boy, did we need that trip. It was just for the weekend, but it gave us time to process and reflect on all that had happened, and to be thankful that we were still crazy in love even after all the difficult things we’ve been through. Maybe even more so because of the difficult things we’ve endured. And when we look at those challenges we’ve had to face over the decades, dealing with a flood or two is no big deal.

Now I’m just praying that I make it through this year without causing another major disaster. And I’m extremely grateful that my family loves me despite my propensity for calamity and can laugh about it all now!

Funny story, Hobbies, Photos, Stories

Riding horses

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My daughter has been riding horses for years. She’s been obsessed with them since she was a little girl. She’s 13 now, and that obsession has blossomed into a true love for everything equine.

This past year she has been riding a beautiful black and white pinto named Trixie. I had only seen photos until last month, when I joined her for a riding lesson. Watching her interact with Trixie was really special to see. And then to see her riding with such ease? It was such a gift to be able to see her in her element, so full of life and confidence.

I joined her for a few more lessons, as sort of a Christmas gift to myself. I had secretly been wanting to for a long time and finally decided to just do it. I was given a horse named Millie to ride. Millie was slow, stubborn, and mildly obsessed with eating. So, basically my spirit animal.

Millie, my spirit animal

My first two lessons with Millie were pretty tame. We mostly walked around the indoor arena while the other riders pranced around with their horses. Millie got really nervous when everyone changed direction and started trotting toward her. She was not a fan of oncoming traffic. I was told that they couldn’t leave Millie to hang with the other horses because they all made fun of her. So she spends her days hanging out with the goats instead. I have thankfully not dealt with too much teasing in my own life, but for some reason that information made me feel a connection to her, if only for the vague connection of emotional suffering and pain.

At our final lesson, I could tell right away that Millie was in a special mood. She seemed more eager this time to move around with the other horses. We were having a good ol’ time walking around the arena, trotting a little here and there. Until she caught sight of that big door out of the arena. That’s when she would ignore everything I was telling her and fight to walk straight for it. I would have to tell her to stop and just stand there until she learned she wasn’t heading that way. She was in Time Out until she learned to follow directions.

At one point during the lesson I was directing her to trot, but she had a different idea. I think she saw all the other horses loping and decided she wanted to join them. So she did! Loping (or cantering) isn’t full out galloping but when you are new at riding it might as well be. I was hanging on for dear life as I scrambled to pull on the reins and shout the key word for stop – “Woah!”. She finally stopped about 6 feet from the door; she was ready to make a run for it. I don’t know how she planned to open the door, but I guess she was just going to figure that out when she got there. Details, details. It was equal parts terrifying and exhilarating.

And that is why Lesson #1 is always: How to tell the horse to stop.

Overall it was a fun experience and I may try it again down the road but for now it was enough excitement to satisfy my curiosity for awhile. I’m happy to stick to running, where I get to decide where I’m going and how fast.

Millie and Mel – kindred spirits, sort of.

Cochlear implant, Coffee, Friends, Funny story, Punky, Stories

Dead Birds and Dangerous Bugs

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I’ve been mulling this story over in my head for awhile now, trying to figure out how to tell it in a way that conveys the hilarity that I felt when it happened. Here we go!

My friend Tara was coming to visit from out of state. She, her husband Scott and their two sons had moved out of Michigan years ago and it had been some time since I had seen them. They were in town for a few days and she wanted to stop by and catch up. I was so excited for this visit, and for them to meet our new dog, Punky. I was letting the dogs play outside while I waited for my friends’ arrival. I like to do this when company comes over because the dogs can be a bit much and the exercise helps to calm them down (or so I like to believe). Tara and her family arrived, and I was so excited to see them! Scott was dropping Tara off for a few hours while he took the boys to the zoo, but they wanted to come in and say hello first.

Scott and Tara are dog people, so I asked if they wanted to meet our new golden retriever Punky, and of course they did. I let the rambunctious dogs inside and they did their dog greeting thing, wagged their tails, barked obnoxiously, etc. And then this conversation happened…

Scott to me: “It’s a bird.”

I have to stop right here and remind you that I am still half blind and deaf. The cochlear implants are great, but I need to be paying attention in order to hear and understand when people are talking to me. Also, if there are other loud noises happening (e.g. dogs barking), they are pretty useless. In other words, I miss out on a LOT of input. My guess is that Scott had said some things that I did not hear, and those things would have given me the necessary context to understand this bird business. Instead, I was starting from scratch with his statement. Now let’s continue…

Me looking blankly at Scott: “Huh? What’s that?”

Scott: “It’s a bird.”

Me: “What’s a bird?”

Scott: “It’s a bird. It looks like she brought in a bird.”

As understanding crept in and my heart started racing, I frantically scanned the room, looking for the “she” that Scott was referring to and that’s when I saw it. A happy, proud as can be Punky, parading a dead bird around my living room.

That’s when I lost my ever-loving mind. I scooted Punky outside as quickly as possible, not wanting her to drop the dead thing in my house. Once she was outside Scott was able to get her to drop the bird, and I brought him an old grocery bag to put it in. Then we let Punky back inside and resumed our introductions.

“So, how have you been? The boys have grown so much! Are those muffins you brought?” Blah, blah, blah.

Then I noticed Scott and the two boys jerking their heads and arms oddly around, looking up and down and all around. What the hell is going on now? Then I hear someone say, “I think we let in a yellow jacket.”

?@#$@?#%#*&!

I couldn’t find the fly swatter, but the dang thing wouldn’t land anyway. It ended up flying inside one of the window blinds and Scott had to vacuum it out. I didn’t use that vacuum for a few weeks, just to be sure it was dead before I emptied the dust cup (yes, I had to look that term up).

I don’t even remember much after this point because it was just utterly ridiculous, all this happening at once. I had gone in a matter of minutes from the excitement of seeing my friends to full on freaking out that there were dead things and sting-y things in my house. All I could do was laugh at the timing and the absurdity. I’m still laughing now.

Scott and the boys left for the zoo and Tara and I settled in for coffee and muffins and talked for hours. It was so wonderful to catch up with her and if it hadn’t been memorable enough, we’ll always share that memory of how it started off with dead birds and dangerous bugs.

Cochlear implant, Deafness, Faith, Health, Hearing Loss, Low vision, Memories, Multiple Sclerosis, Stories, Visually Impaired

The Mayo Clinic

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If you’ve never been to the Mayo Clinic, as I had never been, you might have been just as awe struck as I was. It felt like a theme park for sick people. We had been anxiously awaiting this visit since it was first mentioned by the doctors when I was at my sickest. We felt like our options had been exhausted, and that this was our best hope for some answers. 

We were scheduled to go in late January, at the height of winter storm season in Michigan. We chose to drive because it was much cheaper than flying, and Mike was perfectly comfortable driving the ten hour drive from Michigan to Minnesota. In addition, we didn’t know how long we would be there, because they don’t tell you that. They can estimate, but this is where the fascination for me came into play. They only schedule that first day of appointments. They wait until you are there, until they’ve met with you and run preliminary tests, before they schedule the next round of appointments on the following day. Appointments and procedures with real professionals, scheduled on the fly! They literally take it one. Day. At. A. Time. Everything is handled in this enormous complex with tunnels (so I hear, I never actually noticed any, but that’s not surprising given my state of mind at the time and my poor vision). It’s an incredibly well-oiled machine and I was so impressed, but I don’t ever plan on going back. 

We left on a snowy Monday. The worst of the weather was in Michigan, it got progressively better as we drove through Indiana, and by the time we were in Illinois it was smooth sailing. There wasn’t much traffic through Wisconsin and after ten hours on the road, we arrived in Minnesota to a balmy negative 12 degrees Fahrenheit. It was very cold and a little windy but at least the sun was shining. We checked into our hotel and settled in to rest for our first day of appointments on Tuesday.

On Tuesday our first appointment at the clinic wasn’t until the afternoon, so we took advantage of the extra time and ran some errands. Got the oil changed on the truck, bought some necessary supplies for the week, and had lunch. Then we took the hotel shuttle to the clinic. Very handy. Our first doctor had a ponytail and reminded us both of the tall guy from Penn & Teller, though at the time we couldn’t remember which was which (it was Penn). This doctor asked all sorts of questions and did some basic reflex/sensory testing. He thought all signs pointed to vasculitis, but he needed to do more testing and gather more prior medical records. This whole time Mike was typing everything for me on his laptop, so that I could answer the questions the doctor was asking. We left knowing they wanted an MRI, blood tests, and possibly a plasmapheresis, so we understood we might be there for longer than a week. That was it for the first day, surprisingly, but I was confident we were in good hands.

Wednesday we were up early so I could have blood tests and several eye exams. They put drops in my eyes and took photos inside and out. It wasn’t Glamour Shots but it showed them what they needed to see. We thought we were done for the day but then we got a call from the doctor to come back that afternoon to discuss the results of his research on MRIs and MS. I don’t remember any details of these discussions. What I remember is sitting there, in silence, feeling dazed and overwhelmed.

Thursday I had a very early appointment for an MRI. This MRI was arguably the longest and loudest one I had had to date. Not that I could hear it, because even with my hearing loss they gave me ear plugs, but I could feel the vibrations from the noise. I told the technician afterward that my kids would love to have a picture of the bulldozer that ran over me. I also had an appointment with an ENT in the afternoon. I remember it well. We walked into the waiting room and a woman quickly took me back to the testing area, telling my husband to stay and fill out some paperwork. I told them I needed him with me but they insisted I would be fine. I wasn’t fine. The woman was trying to talk to me, and she was writing things down with a regular pen, which I couldn’t see. At this point I had been having people write for me with sharpie pens, because nothing else was dark enough. I just cried and said, “Can you please just get my husband?” They brought him back and conducted a few hearing tests. The speech recognition tests were impossible for me and I cried some more. The third test was in a separate room. This one was nice because all I had to do was sit with electrodes stuck to my head and wait. It was after this test that they were able to tell me what was happening with my hearing. I simply had a bad connection between my ears and my brain, and cochlear implants would likely work very well for me. This news gave me a lot of hope.

Later that day I met with the doctor again (ponytail Penn) to hear his conclusion about my vision. His determination was that it was permanent. Irreversible. There was nothing they could do to repair the damage to my optic nerves. Mike and I left his office and stood, stunned, in the lobby. I was devastated. I remember resting in my husband’s arms, just sobbing uncontrollably. A woman who had been at the front desk every day that week walked up to us, offering me a box of tissues and an invitation to join her family for dinner. Since we were leaving the next day and I was not exactly in the mood for being around people, we declined. However, she offered to be praying for us, and that really encouraged me. We believe she was Muslim and hoped our God would honor her prayers. 

 I left that day talking of guide dogs and reading Braille but Mike told me to stop. I was getting way ahead of myself, and we would deal with all that if we needed to, but right now we didn’t need to. We had two good pieces of news. One, the doctor had recommended a plasmapheresis when we got home, which they believed would stop any further damage from happening to my optic nerves. And two, I was a perfect candidate for cochlear implants. So, there were things to be hopeful about.

And that was our final consultation! We were driving home the next day. Everyone at Mayo Clinic was extremely helpful and kind. I had hoped for better answers by the end of the week, but I was grateful to learn that I was not dying and that there were steps I could take going forward.

Deafness, Deep thoughts, Family, Friends, Hearing Loss, Miracles do happen, Multiple Sclerosis, Prayer, Stories, Tinnitus, Trauma, Visually Impaired

Trigger Warning: Suicide

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Doctors never did figure out why I had been sleeping so much. They tested for all sorts of things, but came up short. They suspected Susac’s Syndrome, which at the time I thought was fatal, so I’m glad that turned up negative. I’ve had a couple fluorescein angiograms to take pictures of the blood vessels in my eyes, but both times they showed that everything was normal. To this day, I’m still a medical mystery. 

After sleeping a couple months of my life away, I started to wake up a bit more to what was going on. I was still very deaf and still could not see well, and still had no answers and no hope. The reality of it all was starting to set in. I was now, ironically, having trouble falling asleep at night. The tinnitus would get so loud. I remember the ringing sounded a lot like chanting monks, which would normally be a comfort to me, but at four in the morning it was a nuisance. I brought this issue up to Dr. Hong at a follow up visit and he prescribed me Xanax to help me sleep. It worked wonders. I was able to get proper rest at night and was miraculously still able to wake up in the mornings to help get the kids ready for school. 

I want to convey my level of desperation at this point in time without being overly dramatic. Mike and the kids had left me home alone for an evening because I had seemed to be doing so well, but that turned out to not be the case. I was feeling scared and beat down and I couldn’t see any way out of my situation. I was unable to communicate effectively with everyone I cared about. I felt utterly ALONE. I was at the end of my rope, and wanting to let go. I was feeling so desperate for a way out that I seriously considered swallowing the whole bottle of Xanax. Even more frightening than the hearing and vision loss was the thought that I wanted to check out of life permanently. I reached out to my girlfriends, hoping and praying that one of them could come over and save me from myself. My friend Tracy was the first to respond and she rushed over to the house. She prayed with me and hugged me and reminded me that I was not alone in this struggle. She left that night with the bottle of Xanax so I wouldn’t be tempted again.

As awful as it was, that night was a turning point for me. I had to stop retreating into myself. I needed to reach out, both to God and to the friends and family He had put in my life. After my family returned home that night and we put the kids to bed, I shared with my husband what had happened. I could see from his face that he was both shocked and sad, but he was glad I told him and he reassured me that we were in this together, and that he and the kids needed me. We hugged for a long time and he let me cry on his shoulder. It was good to be reminded that he was there for me because, while we didn’t know it yet, we had an important trip coming up at the end of the month to the Mayo Clinic. I’ll be sharing more about that in the next installment of Adventures with Mel 😉

Deafness, Faith, Hearing Loss, Music, Stories

Losing Music

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Friends and family who know me know that I have always had a deep love for music. Music is what comforts me, inspires me, brings me joy. Music is my Happy Place. Not being able to hear music was a heartbreaking loss for me. However, in between the tinnitus and the silence, there was a song stuck in my head. What was so miraculous is that it wasn’t a well known song, or one I even remembered singing. This song, with lyrics inspired by Psalm 40, became my mantra. I sang it to myself, in my head mostly, but often when left alone I would hum it softly or belt it out in the shower. The lyrics were so perfect for what I was going through that I considered it my theme song. 

Jesus, Lover of My Soul

Jesus, lover of my soul
Jesus, I will never let you go
You’ve taken me from the miry clay
Set my feet upon the rock
And now I know
I love you
I need you
Though my world may fall I’ll never let you go
My savior
My closest friend
I will worship you until the very end

Deafness, Disability, Faith, Funny story, Hearing Loss, Multiple Sclerosis, Stories, Visually Impaired

Fear and getting lost in my own home

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This is another story that took place in late 2013 when I was still very new to vision loss and hearing loss. I have quite a few stories packed away, and plan to bring some out here on the blog, once a week or so. This one is quite funny to think about in retrospect but at the time it felt quite terrifying…

Our kids were gone to Grandma’s for the weekend (my mother-in-law) and I woke up in the middle of the night to use the bathroom. For some reason I used the one in the hallway, rather than the master bathroom. I’m not sure why, and it doesn’t really matter, only that this wouldn’t have happened otherwise.

Remember now that I can’t see well, I’m completely deaf, and all the lights are off so it’s pitch dark. I made it to the bathroom without issue, but when I turned off the bathroom light and stepped into the hallway I was rather disoriented. I knew enough to turn to the right, having lived in this house for fifteen years, but then I kept walking forward into my room. Or what I thought was my room. When I didn’t find my bed, I panicked. Legitimate, full on panic. I was reaching around trying to discern where I was but I had no idea. I was turning and flailing expecting to find our closet, a bed. a dresser, anything that would register familiar.

And then I started screaming for my husband. “Mike, Mike! Help! I don’t know where I am! MIKE! I couldn’t hear myself, or any response from him, of course, so I was just hoping I was screaming loud enough to wake him, and then I would wait a minute for him to come to me. When he didn’t come, I would start screaming again, to be sure he would know where to find me.

Did I mention this was an 1100 square foot ranch with three bedrooms? Not an escape room or corn maze. Not rocket science.

So this screaming and waiting went on for several more minutes, maybe 10 or 15, until I decided it wasn’t working and I was just going to have to sleep right there on the floor, wherever that was. So I sat down in defeat. That’s when I felt the rug, and I realized then by the texture that it was the race car rug in my son’s room. Right next door to mine. I was so relieved I didn’t even bother laughing at myself. I’ve had plenty of time to do that since. I just got up, felt around for the doorway I had just come through, and found my way to my bedroom and safely into my bed. I laid a hand gently on my husband’s chest, wondering why he hadn’t come to my aid. I could feel the vibrations; he was snoring. He hadn’t even heard me screaming. He slept right through it. I didn’t tell him about the incident until five years later. He wasn’t even sorry, can you believe that?

This journey I’ve been on since 2013, adjusting to life with disabilities, learning how to be me with limited vision and deafness, has taught me so many things, but one of the biggest lessons I’ve learned is that God isn’t always (almost never, if you ask me) going to tell you His plans. He may be keeping you in the dark about all the details and sometimes you just have to sit and wait until He shows you where to go, one grueling step at a time. And no matter how lost you feel, you might just find you’ve been in the right place all along.

Deafness, Disability, Food, Friends, Hearing Loss, Holidays, Kids, Low vision, Miracles do happen, Multiple Sclerosis, Partial Blindness, Stories, Visually Impaired

Wake up, Mindy

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A fascinating part of this story of my plunge into disability is that for almost a full two months I was sleeping close to twenty hours a day. That seems to fascinate the people who hear about it after the fact. For the friends and family who lived it, it was terrifying. And for me, well, I don’t remember much so you could say it was sort of a blur. 

I’m told a lot of things happened. There were times I was sleeping in bed or on the couch. Other times I was falling asleep at the dinner table. One time I was actually falling asleep while walking through Office Max with a friend. At least, that’s what I was told. I sort of wish I had that on video. 

I know I spent a lot of time in the hospital for monitoring and testing. I remember getting a spinal tap, a CAT scan, and numerous middle of the night blood draws. There was one particular night I woke up to half of my extended family sitting around the room with me. My aunt and uncle from Georgia, my cousin from Grand Haven, and perhaps my grandma and grandpa as well. These were all people who were following the progress updates being posted on Facebook and who sacrificed to be with me, to make sure I knew they were all in my corner.  I’m really grateful I was awake enough to remember their visit.

I had to take a visual field test at the neuro-ophthalmologist’s office to gauge what I could actually see. This is a pretty standard test where you sit with one eye covered and stare into a machine. You stare at the light in the center of the screen and click a button whenever you see a blinking light in your periphery. I’ve taken this test numerous times since, but this first time was the worst. If it was a pass or fail test, you could say I failed. I could not stay awake. It didn’t help that the room had to be dark for the duration of the test. It’s maybe a five or ten minute test and they kept having to stop the test to wake me up again. Over and over and over. It’s comical now, but it was pretty scary then. I vaguely remember this first test but I had no idea I had been falling asleep so frequently.

I slept through most of my daughter’s 4th birthday party. I remember bits of pieces of that event but only after I was shown videos and photos showing that I was there. I cried watching the video because I didn’t even feel like I knew who I was looking at. It felt like sort of an out of body experience. It breaks my heart a little to realize how absent I was for so much of my children’s everyday lives during this period. I can never get that back but you better believe I’m doing everything I can now to make up for it. I have asked my daughter over the years if she remembers me before I was deaf and she always says she can’t. She does remember thinking she had caused my hearing loss because she had been making too much noise. She was only four years old. You know?! See, now your heart is breaking too. 

I also remember Thanksgiving that year. It was the only year within the past decade I didn’t host. Because of course, I was checked out. This made me sad but I was grateful that my husband’s grandparents were willing to fill in and host at their house. I went with no expectations and I was happy to be with loved ones. But when I sat down at the dinner table, I looked down and could not decipher what was on the plate. See, my visual impairment also includes some atypical color blindness, making it difficult to identify anything with bland, muted, or similar coloring. I looked around the table at all the smiling faces as people chatted in silence over their meals. It was just too much. I was there, but I was still missing it. My favorite holiday. With tears spilling over my face, I ran to the bathroom. I was able to calm myself down but I didn’t want to face the family with this red, splotchy, sad face. I cleaned myself up and returned to the table, apologizing for my abrupt exit. I certainly didn’t want to ruin everyone else’s Thanksgiving. And then my daughter Natalie reached over and hugged me. Because God speaks love and grace through four year olds. Of that I am certain.

So that’s how I spent October and most of November. In a dazed, trance like state. I was never left alone. I had a friend who came and stayed at the house with me every weekday while she home-schooled her children. She made sure I was fed and that I took my medications. She even helped with housework quite a bit and kept me engaged as much as possible. When I was too afraid to do normal things like showering, she never laughed or pitied me. She somehow understood the state of fear I was in and rather than scoff at me, she gently encouraged me to take everything one small step at a time. 

When I was too afraid to cut an apple for fear of slicing my hand, she told me she believed I could do it and looked forward to the day I would have the courage to try again. So when that day came, I didn’t tell her what I was doing. I just slowly sliced that apple, artfully laid the slices out on a plate and walked up to the dining room table with a proud smile on my face. She smiled back with tears in her eyes (I imagine) and gave me a big mama hug. Cutting that apple was the first big step for me on the long and arduous path of healing and rehabilitation. I still had a long way to go, but that small but meaningful victory over slicing an apple gave me the courage and confidence to keep going, one tiny step at a time.