I’m only friends with famous people in my dreams. Seriously. I had a dream a couple years ago that I was sitting on the lawn at a Detroit Tigers game, shooting the breeze with Queen Latifah and Mos Def. We were having the best time! I was sad when I woke up from that dream, because I feel like we didn’t get enough time together.
This morning I had a dream that I was riding in a car with Patrick Dempsey and Peter Dinklage. Dempsey was driving, and Dinklage was in the backseat. I was riding in the passenger seat, and I was terrified. We were driving through a lot of traffic, over a massive, grated metal bridge. I felt like we were going too fast, and Dempsey was weaving in and out of traffic, past lots of larger vehicles like semis and vans. I was sitting there, helpless, expressing my fears, while Dinklage was shouting words of encouragement to me from the backseat, to no avail. I finally covered my eyes, and then the dream was over. I was glad that dream ended, but I would have loved to see where it was we were headed. And I’d love to sit down and have a conversation with Patrick and Peter.
Dreams are fun sometimes. Except when they are scary, I suppose. When that happens I really have to take myself through some focused breathing before getting out of bed, to remind myself what’s real and what’s not. They feel so real sometimes, it’s crazy!
Category Archives: Daily Snippets
(Final) Daily Post #12 – December 16, 2025
I might still continue daily posting, but I’m no longer going to call them daily. I don’t like the pressure, ha!
Today was a slow moving day, fatigue was in the background all day long but I was able to take care of the dirty dishes. Small victories. I also had a couple really great conversations and connections with friends, and that is an even bigger win, in my book. I have been blessed with some pretty incredible friends.
Tomorrow will be a food day. I have to order groceries for the husband to pick up, as well as get started on making yummy Christmas treats. And I may throw some vacuuming in there just for funsies. We’ll see. Have a great night folks!
Daily Post #11 – December 15, 2024
Did anyone notice that my #9 daily post was incorrectly named Weekly Post? I think that was the start of my downhill trajectory with fatigue. I did not post yesterday. I had trouble in the morning, so I slept in and missed church. I had a mostly uneventful day and then I was in bed before 9. And then this morning slept until 10. So you know, fatigue has officially set in. And the timing of it was unexpected, but it makes sense when I recall all the activity last week. My body is in recovery mode. This is the price you pay for doing fun things when you have M.S. I don’t care for it, but I’m not going to stop doing the fun things. I need quality of life, even if it comes in spurts and stutters. I can handle the down time. At least I have the dogs to keep me company.
This week I don’t have many events on the calendar, but I do have things I want/need to do. I’m making puppy chow for a family Christmas party, I still have some gifts I need to wrap, and I want to make some roasted pecans. But before all that I need to get my kitchen clean again, and that takes energy I don’t currently have, so it will just have to wait. I’ll get there, eventually.
Since this was yesterday’s update, I’ll try to do another one tonight and get back on the regular. No promises.
Daily Post #10 – December 14, 2024
Number ten! How about that? I think at this point we’ll just see how long I can keep it up.
Today is Saturday, so I was able to sleep in, which was wonderful. I did some reading and studying in the morning and then my husband and I headed out to get lunch and head to his mom’s house to help her with some technical issues. He is an only child and he does an amazing job helping both his mom and his dad with various tasks. I hope we get that lucky when our kids are grown. We had a great time visiting with her, and Mike was able to get her all squared away.
When we arrived home I made a ham and cheese fritatta for dinner. My daughter doesn’t like eggs, potatoes, or cheese, so she declined to eat with us, and my son wanted frozen burritos, so he was on his own to make those. I hadn’t made a fritatta in ages so I used a recipe to be sure I had the ratios right, but I messed it up a little. I had a hard time reading the steps in the recipe and put the cheese in too early, so I just added more at the end. It was a tad crispy but we both liked it, and I’ve dubbed the new creation, Melly Fritatta. No pictures, it was hideous. Hideous, yet tasty, and I’m looking forward to eating the leftovers tomorrow.
It’s common knowledge around here that I’m not much of a cook, so I was happy to make something that landed well at least with the adults. I’ve come to accept that I won’t be able to please my teenagers with my cooking. If you know, you know.
And that was pretty much my day. Next week I have holiday treat making to do, as well as finishing up the gift wrapping. It should be a lot more chill than this week was, and I hope I don’t regret saying that, because it may jinx it. We’ll see how it goes!
Weekly Post #9 – December 13, 2024
Tired of my daily updates yet? I am, a little, but I’m going to keep it up for awhile. Today was mostly uneventful, but we had some wins. I slept late, until 10:30, because I’m still recovering from three consecutive days of full activity. I was feeling really sore, and my legs were hurting a little from the cold weather outside, but I took a shower and that warmed me up a bit, so it relieved the pain. Nerve pain is no fun, but I’m glad that heat and movement are two things that help.
After my shower I went downstairs to make my coffee and loaded the dishwasher. If you see me going to bed with a stack of dirty dishes left in the sink, that’s a clear signal that I’m dealing with fatigue. I am really bothered by dirty dishes and will usually take care of them as soon as I can, so when I don’t there’s usually something wrong. But, I tend to have a bit more energy in the mornings, so this morning I just took care of them while my coffee brewed.
And then! Then, I started a movie on my laptop and started wrapping Christmas presents. This is not a fun project, ever, but it is one that feels great to have done. I finished after four hours, right as my daughter was coming home from school. Also this evening we finally decorated the tree that’s been sitting bare in our living room for the last 6 days. I guess this means I’m ready for Christmas. Next week I’ll wrap the last of the presents, make batches of puppy chow and roasted pecans.
With me being so busy and it being so cold outside, I haven’t done any running in a bit, but it’s not for lack of thinking about it. I’m sure once it slows down a bit I’ll get back out there. Cold weather runs are really difficult to get yourself out for, but they are always exhilarating and rewarding. Hopefully next week.
Anyway, that’s my update. I’m off to bed!
Daily Post #8 – December 12, 2024
Oh boy, you guys. My brain, my legs, my arms. They are all so tired today. I moved around and did things, but most of the work I did was sitting here at the desk. I tidied up my space a bit, because when I am surrounded by clutter I just can’t think straight. Too much nagging from the objects needing my attention.
I had planned to work on wrapping Christmas gifts today, but the kids had a snow day. That meant my early morning meeting with the school was postponed as well. Again. They had a snow day last week on the same day as my scheduled meeting. Anyway, so no wrapping got done. However! I did organize the gifts, assessed what we have, updated my spreadsheet (of course I have a spreadsheet) and even placed a couple last minute orders. One of them won’t get here in time for Christmas, but it will be close. So I’m ready to devote tomorrow to boxing and wrapping the gifts and I do hope I have the house to myself so I can accomplish that in peace.
On the subject of Christmas, you may remember last Saturday I posted about us going to get our Christmas tree? Yep, and it’s still sitting in our living room, without decoration. The dogs don’t seem to mind, but I talked to the kids and we’ve decided tomorrow will be the day to decorate, so I think I’ll make some peanut butter popcorn tomorrow so we have something yummy to snack on while we decorate. It always feels to me like a daunting task, decorating the tree, but the kids are almost fully grown adults and are super helpful, so it’s really never as bad as I expect. We will have a good time.
And that is all for today. I’m sure there was more I wanted to talk about but I am beat. I did not exactly rest the way my body needed, so I’ll be putting myself to bed once I hit post. Good night, y’all.
Daily Post #7 – December 11, 2024
It’s bedtime, folks, and I almost forgot to post! My head is all squirrely today. Trying to set up new phone and learn necessary features is such fun. I mean, not really. It’s exhausting, but I’m getting there. I had some trouble last night getting it properly connected to my cochlear implants via Bluetooth, but I handed it over to my daughter and she was able to get it working. Teenagers, you gotta love ’em!
Today was a fun day filled with great conversation with beautiful people. First, at BSF (Bible Study Fellowship) and then later with two of my besties. Three days in a row spending time with awesome women. I am feeling super blessed this week.
Tomorrow and Friday the plan is to wind down and regroup. I have an early morning online meeting with someone from the kids’ school – nothing major, just some routine business to take care of. Hopefully it will be quick and painless lol I had thought about going to the gym afterwards but I decided to postpone that for Friday or Saturday because not being home much for three days in a row leaves me wondering what is needing my attention. The kitchen, fridge, our personal finances. All of it needs some TLC so that’s what I’m looking at. I’m sure you’ll enjoy reading all about that after the fact, right?
I’m enjoying these quick daily updates. One thing I should mention before I go – just to keep it M.S. related for all those who may be curious – setting up this new phone, finding all the features, reading the screen, etc. is utterly exhausting on my eyes. It’s legit work, for real. I find I need to take super frequent breaks to rest my eyes. When they start acting all stabby and bouncing around, I know I’ve overdone it. It’s slow work, and I’m really trying hard to stay thankful that I still have some vision and it’s remained stable all these years.
And that is all, I’ll let you go now. Sleep well, my friends!
Daily Post #6 – December 10, 2024
As expected, I am ending the day exhausted from a productive and fun day of shopping with my sister! It started out with a quick trip to the dermatologist to follow up on my rosacea. The treatment is working well, daily ivermection applications and antibiotic treatments as needed when my skin flares up. It flared up after Thanksgiving and I’m almost positive excess sugar was the culprit, so I’ll be sure to avoid that in the future. Okay, that’s a lie, I like sugar. I’ll probably just try to keep it in moderation. It’s impossible to say no to pumpkin pie.
My sister picked me up from the dermatologist so we could get a rapid start. We started out at Five Below where I found a case and charging adaptor for my new phone, as well as some fun gifts for the kids. Then we traveled over to Costco, Target, Marshall’s, and Bath & Body Works. There was a stop in the middle for an appetizer and drinks, just to rejuvenate us for the rest of the shopping. We were holding up quite well, but our brains were needing the break. I arrived home with bags and bags of goodies for the family and I’m ready to start my Christmas wrapping. It was a great day! We have really enjoyed these times and are happy to continue the tradition each year.
That said, I’m exhausted and I still have another full day ahead so I’m praying I can maintain. This is a lot for me so I expect I’ll be dragging my Thursday and Friday. For sure, I’ll be dragging. I know I’m pushing myself beyond my normal limits and just banking on the ability to rest for a few days after. I’m just grateful to have the opportunity to have memorable moments with friends and family. Wishing you all a great night and I’ll talk to you agin tomorrow, Lord willing. Shalom!!
Daily Post #5 – December 9, 2024
I almost forgot my daily post! So, I’m sitting here at my desk, sans cochlear implants (so in the silence) and with my face 10 inches from the screen because I already took my contacts out. Basically, I’m going to make this quick. Today entailed some prayer in my living room with another mom from our school (we do this every other week but normally there are more than just the two of us), then a wonderful brunch with a friend I hadn’t seen since May. We had so much catching up to do and we’ve already planned the next meetup for next month. Then a quick stop at the lab to get my repeat blood work done. Hopefully they get it right this time. Then a stop at Starbucks for a mocha hazelnut latte – 2 pumps mocha, 4 pumps hazelnut. I took a solid nap, and then woke up to find my husband had successfully procured our new phones and service. We are now 4 for 4 an iPhone family which I am honestly not handling well at the moment. Nothing against iPhone, it’s just something new. And I am having significant trouble finding things on the phone and seeing the screens to log in to my various necessary apps, it’s just an exercise in extreme frustration. Both my kids have helped me with this, but a lot of it I need to just figure out on my own. It’s a very slow and somewhat painful process with low vision. I’m reassured by iPhone users that it will be worth the switch, so we’ll see. I hope it is.
That is all. You get one big run-on paragraph and I’m off to bed. We’ll talk again tomorrow!
Daily Post #4 – December 8, 2024
Another busy day today. I went to church in the morning. That was nice. We had our annual meeting at the start of the service, which just means the board updates the congregation on the state of the church’s finances and other administrative items. Super boring, but crucial because we are a 501(c)3 corporation. And if we were to ask the congregation to come to a meeting, they likely would not show up, so you have to catch them while they are there for the service. A captive audience. Sneaky, I know.
After church the husband and I went back to Verizon to see if we could get the new phones set up. Negative. I had to unfreeze our accounts with the credit bureau (I froze them a couple months back when there was a huge data breach), and they hadn’t updated that information with Verizon yet. It was a weekend, and the guy at Verizon said that was likely the reason. They just need a human to handle it, perhaps? We are hoping that it gets resolved tomorrow because poor daughter is itching to get a working phone back.
The third act of the day was a baby shower. My daughter and I attended, and I’m so glad she went with me because I didn’t know anyone there. Just the mom-to-be and her mother-in-law. It was a solid three hours of estrogen and I was pretty exhausted by the end of it. But, I’m happy for the new parents, and I’m glad we were able to be there.
I finished the day with mundane stuff that needed to be done. Washed dishes, folded laundry, vacuumed, that sort of thing. Took a look at my calendar for the week to make sure I have all my rides scheduled. I still have a blood test I need to get so we’ll see when I can squeeze that in. It’s the test for the JC virus that I’m required to get every six months. My monthly infusions carry a much greater risk of me getting a fatal brain disease, PML, if I test positive for the JC virus, so that’s why we do this. Only I had the test done last month, and they screwed up the order so I need to go back and try again. I’m super grateful I’ve remained JC negative after all these years on the medication (Tysabri) and am praying I continue to stay that way.
In other news, Christmas is coming. Have you heard? My kids have both issued their wish lists (at my urgent insistence) and my sister is taking me shopping this week so hopefully we can find some things on the list. I’ve already been able to do some shopping online but a lot of items are better found in stores, and that’s something I need assistance with. We started this shopping tradition a couple years ago and we had such a great time, we decided to keep doing it each year. It’s a drive for my sister to come up to where I live, but it’s a huge help to me. I’m grateful for her help in finding things and for her patience when I’m not 100% clear on what it is I’m looking for. It will be an exhausting day but productive and memorable, I’m sure.
That about sums up my day. I’m hoping to sleep decently tonight. The last couple nights I’ve been waking up with night sweats, and that’s no fun. Hormones are a hoot.
Little M.S. Runner 