All posts by Little M.S. Runner

Forty-something, married with two kids and two dogs. Trying hard to live every day to the fullest with multiple sclerosis, impaired vision, and deafness. Couldn't make it without my Savior, Jesus Christ.

Bilateral CI Success

Tuesday most of the day was taken up with a return trip to the audiologist. I was activated last Tuesday, June 9th, so this visit was just to see how I was doing with the left ear, and to make some more adjustments to the volumes on the electrodes. The volume for the left ear was overall too low, so I noticed a big difference after these adjustments.

The biggest change so far, the biggest improvement and blessing from the second implant, is that the tinnitus is greatly reduced. It is almost gone completely, when I’m wearing both processors. That has been a pleasant change, and one that didn’t come until this week’s adjustments. It’s so nice, so peaceful, to have ACTUAL silence. Which is ironic, right? Because before, I was profoundly deaf, not able to hear real world sounds, but there was still perceived noise going on in my head, and I had sort of become accustomed to it. Yet I guess in becoming accustomed to it, I hadn’t realized how much it bothered me. And now that it’s gone, I’m loving it. And I don’t even care that the left side is still slightly sore from surgery, or that these implants are bulky, or hard to style my hair around. Those things could be nuisances, but they aren’t. They just don’t bother me.

Because I am loving the silence. That is strange to say. From someone who unwillingly lost her hearing in a matter of days, nearly two years ago? Someone who has endured countless medical procedures and tests, including two surgeries to regain her hearing? But hearing the things going on around you in reality is far different than hearing the incessant ringing going on in your head. Because tinnitus really is all in your head. So yes, all of that was worth it to get relief from the ringing. Of course, if that were the only benefit I would say it’s overkill. They still haven’t found a cure for tinnitus. But hearing again, the real things and ONLY the real things, is wonderful. And it only gets better from here. I am looking forward to more double CI joy!

Donuts in the park

Monday the kids and I walked to the local Quality Dairy for coffee, hot cocoa, and donuts. It was a leisurely mile long walk. Natalie had her vanilla frosted donut with sprinkles, Luke picked a glazed knot of some sort, and I chose the apple fritter, leaving the custard filled long john for another time.

On the way back home we stopped at the defunct elementary school and sat on a picnic bench in the shade while we ate our donuts and finished our drinks. We had nowhere to be, the whole day ahead of us. We chatted about the week ahead of us as we scarfed down our pastries. It was a beautiful morning, just getting warm but with a nice breeze. The kids were happy, I was happy, we were all happy just enjoying each other. It was beautiful. A memorable day for sure.

This school, which is less than a half mile from our house, is the school Mike attended as a child. The building is not used as a school anymore, but they still hold community events there, and they keep the grounds clean and groomed. There are swing-sets, basketball courts, tennis courts, monkey bars, and more. All this time we have lived here I have not become very familiar with the school, but I plan to this year. This year I am healthy and lucid enough to take the kids there, and the kids are at the perfect age to enjoy it. I plan to spend many more summer hours there with the kids, this year and hopefully every year after. We can go in the morning before it gets too warm, we can go around lunchtime and have picnics, and if it gets too hot, we can just walk on a little further to the Quality Dairy and get ice cream to cool ourselves down. It’s perfect, really. I can’t believe I’m just now discovering it, but I’m not going to waste it now.

I’m having fun

I haven’t written much lately because I’ve been busy enjoying my time with my kids. That’s the best excuse, if you ask me. The trouble is, these experiences we’re having here at home make great stories for blogging, if only I could carve out the time to actually write. I will, I promise. Because it’s what I love to do. So stay tuned, the stories will come soon enough. And then you’ll read all about the cooking and cleaning and walking and playing. I will even do my best to make it interesting for you as it was for me.

Coming soon…
Bilateral hearing
Bird poop
De-cluttering with kids
Donuts in the park
Pancakes and again, pancakes

Bilaterally bionic and neurotic

Yesterday was an exciting day. Yesterday I had my 2nd CI (left ear) activated! I admit the event lacked the luster the 1st one did, but that’s to be expected. The first one took me from deaf to hearing, this second one will take me from “okay” hearing to “better” hearing. I am still forever grateful, but I think the highs of being bilateral will come in bits and pieces as time goes on, as I recognize the little things I may have forgotten I was missing. On the way home from the activation, I noticed I could hear the blinker on the truck, something I hadn’t heard in quite a while, because it’s on my left. See? It’s the little things.

I went to bed around 9:00 last night. I don’t normally go to bed that early, but I was feeling pretty crappy. I had been coughing most of the day, so I had stayed away from caffeine. Good for the cough, but resulted in a major headache. That coupled with some stomach issues and the excitement of the day left me quite a mess. However, the sleep must have served me well, because I was pretty wide awake at 6 this morning, and feeling much better. Even wide awake, my body doesn’t move so well, but I was up by 6:30. I put both my ears on (!!) and moseyed on out to the living room. Luke (my early riser) was on the couch, watching tv. We chatted for a bit, then I came into the kitchen to make breakfast. And of course, instead I am writing.

It’s day 3 of summer break for me and the kids. This means less work for the kids, but more work for me. No more lazy days, no more morning naps, and no more spotless floors. I like keeping the house clean, but I realize that’s going to become more difficult with the kids home. One of my hopes as a parent is to teach my children how to clean up after themselves, but that’s not a quick process, right? I think repetition and years of patience are the keys here. Those and being a good example, of course. But this summer, I don’t really have the energy for keeping up with my own high expectations. And this is how I plan to deal with that ugly fact: I’m just going to pretend like we’re camping! Every time I step on a wad of dirt or pile of crumbs and that frustration rises within my belly, I’ll just pretend like it’s totally normal to have dirty feet. Dirt in the entryway? Crumbs in front of the couch? It’s okay! We’re camping!! I just won’t tell the kids, because then they’ll want to pitch a tent in the living room, and that would just be going too far.

Have I become that neurotic? Sadly, I’m afraid I have.

Taco night

Growing up, my family had our own traditional way of preparing tacos. It was one of my favorite things. One of the unique things about our taco nights was that we would fry our own corn tortillas in hot oil on the stove. Not great for the arteries, but super delicious.

My husband and I both love tacos. We made tacos “Selleck-style” for years, but soon grew tired of the mess. Also, babies came along. Those babies are now young children, and have grown to share in our love for tacos too.

Along the way we’ve created our own tradition of using the leftovers (meat, beans, cheese, lettuce, tomato, onion, sour cream) to make nachos the following day. Taco Night is therefore always followed by Nacho Night. Knowing this, I always prepare the fixings and put them in plastic, re-sealable containers. It makes clean-up a breeze, and makes Nacho Night that much easier. It’s my little stroke of genius, and it only took me a year to come up with it.

This last time we had tacos, after I finished eating, I asked everyone if they had had enough to eat. They all replied yes, so I began putting the tops on all the food containers. As I was snapping the last one into place, this exchange occurred:

Natalie (shouting): NOOOO, I want another taco!!!
Me (sighing): Really??
Natalie (now calm and collected): No.

That girl. She loves to make a joke, and her timing is impeccable.

C is for cookie

I have always loved baking. When I got sick and lost vision, I stopped. It broke my heart, really. But patience and courage prevail! Every day I’m improving, and every day I’m taking tiny steps toward regaining some independence and enjoyment in life.

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Hence, the cookies! Chocolate chip cookies, made with love. Yesterday’s batch using old secrets was terrible, so today I tried something new. And you can see from the photo, I couldn’t wait to try one. It was perfection. Simply perfection. Got milk?!

Growth spurt

Either the pants all shrunk in the wash or my daughter grew 2 inches overnight. Seriously. It seems like all of a sudden none of her pants fit. None. Thank goodness we are heading into warmer weather, so the need for covering her ankles is not so urgent.

We’ve known since early on that she would be tall, like her father. At this rate she’ll be taller than me before she hits middle school!

Tough Luck

My daughter says some pretty funny things. I hardly ever record them, but I think I ought to start. I never remember them later on. Like when you ask her to bring you something, or she shows you that she finished her homework, she presents it to you with a head tilt and an emphatic “Boom.” Like saying “and there you go”, but with one simple word. I don’t know where she gets this attitude but I suspect it may have been me.

Last night Natalie went to bed, and Luke and I started reading a book before it was time for him to go to bed. Ten minutes later Natalie emerged from her bedroom, crying real tears and sniffling something fierce. When I asked her what was wrong, she cried “I ran out of luck!”

Oh dear. That was certainly a new dilemma for this Momma. I wasn’t really sure what to tell her. I mean, it’s certainly not a vital need for survival. I told her that it would be fine, and that she didn’t need luck anyway because she had Jesus living in her heart. And when that didn’t work, I let her cozy up on my lap while she listened to Luke read about Amelia Bedelia’s baking blunders.

Who needs luck when you’ve got snuggles??

Kitchen Disasters

I am a disaster in the kitchen. My dad passed all his chefly talents to my sister and brother, and gave none to me. For years I have managed, sticking mostly to simple meals and the occasional baked goods. However, it seems that ever since I lost a considerable portion of my vision, I have taken a turn for the worst. During that time of visual downturn in the fall of 2013, I was “checked out” for awhile, and it seems I haven’t fully checked back in. I lost a crucial brain cell or two.

For example, last weekend we were having friends over for dinner. I was excited to make one of our favorites, penne sausage marinara. I had the dish mostly prepared ahead of time, so I only had a few simple steps left. I assembled the dish for baking, put it into the oven, and set the timer for 30 minutes. Thirty minutes later the timer went off and to my dismay, the cheese on top had not yet melted. My intelligent friend thought to investigate by sticking her hand in the oven. It was cold. Seems when I had thought about preheating the oven, I had not followed through. The next time someone tells you “it’s the thought that counts”, I assure you it is untrue. Actions, my friends, actions are what count. Doing the thing you thought about doing, like actually turning on the f-ing oven, are what count.

Now, I know what you’re thinking. You’re thinking, “well, that’s not such a big deal. You didn’t mess it up, you just delayed it a bit.” Don’t worry, I have more.

So then there was the time I decided to try a new recipe for meatloaf (my son’s favorite). Word to the wise, always read a recipe in it’s entirety before you start. I was so gung-ho about trying this new recipe, I just started throwing everything in to mix with the ground beef. Yet as soon as I dropped the brown sugar and mustard in, I had a second thought. I checked the recipe (with my clean hand, the other covered in raw meat, eggs, and brown sugar) and discovered that what I had used as a meatloaf seasoning was actually meant to be the topping. That day I cried. I felt completely inept, that I couldn’t even prepare a simple, classic dish. But! Mike consoled me, told me it would be fine, and insisted I bake the loaf just as it was. And we did, and it was delicious. A little too moist, but still delicious.

Then there was the time I made what my sister and I like to call “Amazeballs Chicken.” It’s chicken breast stuffed with roasted red peppers, spinach, and goat cheese. It’s divine. The trick is to sear it in the pan then bake it, pan and all, in the oven. The problem with that is that my brain is used to holding pans while they are on the stove, which does not require an oven mitt. So when the chicken was done baking, I made the extremely painful mistake of trying to remove the pan from the oven, sans oven mitt. That was a painful mistake, one I had hoped never to repeat.

Sometimes hoping is not enough.

Just last week I had a friend over for lunch. I made a frittata, which is the easiest fancy sounding dish I know how to make. Of course, I make it because it’s delicious, not because I like fancy food. In order to make a frittata, you first do a lot of the cooking on the stovetop, but you leave the food in the pan and finish the cooking in the oven. (Do you see where I’m going with this?) Of course I wasn’t going to make the same mistake this time. This time I was sure to wear the oven mitt when I pulled the pan out of the oven. However, it seems I turned my brain off after I set the pan down. Not three seconds after I took off the oven mitt, I proceeded to move the pan inwards, away from the edge. With my bare hand. I cursed, multiple times. I ran to the freezer to cool it down as quickly as possible, but it was burned pretty good. I had to hold an ice pack on it well into the evening.

I didn’t make it to ASL class that night.

Have you had enough? I have one more. This just happened this week. We had some over-ripe bananas sitting on the counter, just begging to be baked into bread. So I started mixing the eggs and sugar and vanilla, and then had the genius idea to add cinnamon for an extra kick. So I grabbed the spice jar from the cupboard and started dumping it into the batter, while the batter was mixing (love my Kitchen-Aid). As I poured it into the batter, I realized that it felt much different than the consistency of cinnamon. It was not so much like a powder, but more like… crushed red pepper. Not the extra kick I was looking for! All that batter, down the drain. Thankfully, I had not yet added the bananas, and could try again another day.

So maybe I ought to just shake these off and call it bad luck, but it’s not that simple for me. I can’t work outside the home. My identity used to be wrapped up in my job and my education. In the fall of 2013, I lost all that, but was given something greater in return. I’m a homemaker now. I have a renewed focus and appreciation for my husband and my kids, and I strive to be the best at what I CAN do. Those nights I screw up making a meal, I start to feel like I can’t even do that, but then my husband comes and wraps his arms around me and tells me he’s proud of me, and appreciates all that I do.

It’s my family that keeps me going, and if it weren’t for them, there wouldn’t be a fresh loaf of banana bread (with cinnamon!) cooling on the stove as I type. I can’t wait to share it with them 🙂

Never Forget

I am a grown woman, and my dad is a World War II history buff, so I’m embarrassed to admit this. Until yesterday, I had no clue where Pearl Harbor was. I am reading a book, “Maude”, about a woman who was alive in the early to late 1900s. When the bombing on Pearl Harbor happened, one of her children asked her where that was, and when she said Hawaii, I was more than a little stunned. I guess I always assumed it happened overseas. Not on our turf. And I’ve never had a desire to go to Hawaii, but now I do, if only to visit the Pearl Harbor museum there on the island of Oahu.

I wouldn’t normally write a whole post about something so trivial, but I find it interesting that this knowledge came to me just at the start of the Memorial Day weekend, so I wanted to share. I want to pay tribute to those who lost their lives while serving our country. If you are spending time with family and friends this weekend, eating good food and playing games, please know that you are afforded the freedom to do these things because of the brave soldiers who gave their lives for our country. As we celebrate this weekend, let’s remember why. Let us never forget.