All posts by Little M.S. Runner

Forty-something, married with two kids and two dogs. Trying hard to live every day to the fullest with multiple sclerosis, impaired vision, and deafness. Couldn't make it without my Savior, Jesus Christ.
Daily Snippets, Deafness, Deep thoughts, Disability, Family, Friends, Health, Holidays, Low vision, Mental health, Multiple Sclerosis, Nonsense, Running, Stories, Visually Impaired, Writing

Some Friday Ramblings

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**Note, I started this post several days ago and didn’t finish it. I just didn’t feel like I was writing the way that I used to, or would like to, or “should”. All kinds of silly reasons to abandon a post, but whatever. I’ve been trying to hop back into the art of writing that I have loved, on and off, my entire life. After completing that marathon I was exhausted in so many ways and then lots was happening here at home that required my energy and attention, and then Thanksgiving, and on and on with the reasons/excuses for my absence here. I really desire to get back to regular blogging, regular writing. Lots of changes have happened with me over the last two years so I’m hoping “Writing Mel” is still alive here. I believe she is, and we are just dusting her off a bit. Bear with me, por favor. Gracias. Now back to the original post.**

I noticed when I logged onto WordPress today that they had a writing prompt; the question was “what will your life look like in three years?”. Which is interesting to me, because I was just hopping on here to tell you about a discussion I had with my husband recently that was along these lines. We were basically discussing whether we were content with our lives. And if asked that question, I would say that absolutely, I am content. However, if you had asked me 15 years ago if I would have chosen this life for myself, the answer would have been “hell, no.” I would never have chosen to be disabled and unable to work a job. Having multiple sclerosis, being deaf *and* half-blind, simply put – SUCKS. But I’m 10 years into this, and while it’s taken time, I’ve slowly learned to see (not literally, unfortunately lol) and be thankful for the benefits that have come from it. I’ve learned from these struggles. They have made me who I am today, and I love who that is.

I feel like I’m coming into a new season of life. I’m done training for marathons (for the next few years, at least). My kids are teenagers and can feed themselves (and prefer to, actually). The dogs are pretty low maintenance. So now I’m at a point where I’m learning how to rest. I’m learning how to be okay with sitting still. For as long as I can remember, I have had trouble with sitting still. Not that I physically can’t, but that when I do, there is a general unease felt underneath my skin and deep in my spirit. Like I’m “supposed” to be doing something. I’m often noticing my shoulders are hunched up and I need to consciously pull them back down.

I was actually discussing this general unease with a friend the other day, and she expressed how completely opposite she was from me in this regard, and we had a laugh. She seemed like she was saying she rests too much, and finds herself procrastinating. Sounds a bit like we would do well if we came more to the other’s side and met in the middle. But then where would be the fun in that? I love the variety I see in all of my friends and family members. It’s funny to me the things we experience and think are normal for everybody, when really we are all so different in so many ways. It makes life a lot more interesting, and brings us closer together as we support each other in our areas of strength and weakness.

So back to the season of rest. That’s where I am currently. I still have an ongoing list in my head of all the things I want to *do*, but I’m trying to be more kind to myself. While I’ll never regret running that second marathon, I will admit that I made the commitment without full consideration of my limits; physically, mentally, emotionally. So you could say I’m taking a break. Ish. A semi-break. Evaluating what I value most, and then easing those things back in. It feels a little like riding an inner tube on a lazy river. I’m enjoying it so far.

And that, my friends, is a little taste for you of the rambling that goes on in my brain on the daily. You are welcome. See you next time.

Faith, Family, Multiple Sclerosis, Photos, Running, Stories

Marathon 2.0 is in the books!!

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I so badly want to tell you all about this marathon, but it’s 9 days post-race and I am still processing. The mental fatigue is real. I have really struggled to put pen to paper and that is why I decided to just give you this brief update and save the full rundown for another time. So for now I will leave you with this:

This race marked a 10 year anniversary and celebration of how far I’ve come since becoming permanently disabled. I have healed in so many ways mentally, emotionally, and physically over these past 10 years. I didn’t realize it when I signed up for this race, but it has served as a symbol of that healing. Completing this marathon marked a tangible victory representing a thousand little intangible victories that have happened over the past decade. I am truly grateful to all of the family and friends who have supported me through everything. All the difficult moments where I didn’t know if I could stand, literally and figuratively. I would not be here today without them. Drawing from my faith in Jesus Christ and the support from so many others, I was able to complete this second round of marathon training and ultimately, the epic 26.2 mile race at the end.

My husband and kids, and my fabulous cousin and guide runner Zack. I’m in a wheelchair because you get special treatment if you can’t stand up at the finish šŸ˜‰

Now my only real goal for this second marathon was to beat my first marathon time, which was 6 hours and 59 minutes. I had trained for and run a half marathon at the end of May, so I took that into account when deciding where to jump into a marathon training plan. My official marathon training then began in June and I trained for an additional four and a half months. In that time I ran and walked 306.2 miles for a total time of 76 hours, 17 minutes, and 7 seconds. As for the race itself? I finished my last 26.2 miles in 6 hours, 20 minutes, and 4.8 seconds. And if you are having a difficult time wrapping your head around all that? Now you know why I’m still processing 9 days later. It was so much work and I doubted myself from start to finish, but I stuck with it and I completed my goal. No, I crushed my goal. Obliterated it. I am proud of myself for completing this monumental challenge and I may do it again someday, but for now I’m going to hunker down and rest. An aggravating part of me is really itching for the next big goal but I’m giving myself the time I know I need in order to decompress and recharge.

Thank you for following along with me on this marathon running journey. It has been truly unforgettable. Good night and God bless.

Deafness, Disability, Exercise, Faith, Family, Low vision, Multiple Sclerosis, Photos, Running, Stories, Visually Impaired

The countdown continues

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Flat Marathon Mel

And above we have your girl, Flat Marathon Mel. This is basically what I’ll be wearing tomorrow. Unless I change my mind on the way and switch out accessories. I’m going by the forecast so we’ll see if the weather cooperates. It’s looking to be around 50 degrees and dry. The rule of thumb is to dress for 20 degrees warmer because your body heats up while you’re running. I’ve always followed this rile and it works, but it does feel a little like torture in the beginning when you are standing in the cold feeling drastically underdressed. But I know my body, and I heat up quite a bit, maybe more than 20 degrees, so I believe the tank and shorts should be perfect.

I seem to have forgotten why I signed up for this race so I’ll be spending the rest of the night reminding myself. It’s gonna be fun. It’s gonna be worth it. And God has and will give me the strength to keep going when it gets hard. This race represents all of the ways Jesus has healed me physically, mentally, and emotionally over the past 10 years. This one isn’t about proving i can do it. This one is about enjoying the growth process and celebrating the outcomes. This race for me is about proclaiming victory. We can do hard things when Jesus Christ is our strength.

Lord Jesus, please be with me extra close tonight as I pretend to sleep and tomorrow as I pound the pavement for 6 or 7 hours. May you get all the glory for this one. I couldn’t do it without you.

And also thanks to my cousin Zack, who agreed to be my guide runner without hesitation! He enthusiastically agreed and I’m looking forward to our extended time together. This is such a unique opportunity to share. It’s truly a gift, and I’m excited.

Now it’s off to bed folks! Wish me luck!

Deafness, Food, Hearing Loss, Low vision, Multiple Sclerosis, Photos, Running, Visually Impaired

Marathon prep

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Lotsa stuff!

I’m getting ready! Working through my list. This isn’t all of it, but it’s a good portion. I still need to fill my hydration backpack and have hubby drive me to the store to get some protein bars.

Physically I’m feeling ready but a little worried that I haven’t done any walking or running in the last few days. I did walk to the bus stop Tuesday, and I count some of my housework as cross training , so I haven’t been a total slug. I’m packing myself and getting lots of rest too. Eating all the foods. Eggs, bread, fruit smoothies, sweet potatoes, stuff like that. Carb loading is probably my favorite part of this!

I do believe I’m ready to kick some ass ay this race. Not in the sense that I’ll be fast, I’ll still be a back of the pack runner, but I don’t compete with others. I compete internally and I’m confident I’m ready to beat my first marathon time of 6 hours 59 minutes.

Tomorrow we’ll go pick up race packets and then I’ll get another picture for you with the complete set up. Now let’s do this!

Daily Snippets, Disability, Visually Impaired

The junk mail monster is messing with me

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Recently I started receiving regular spam email messages – not to my spam inbox, but my regular inbox – alerting me of jobs available in the area. I ignored them for awhile, then recently tried to unsubscribe so we’ll see if that worked. But LinkedIn has since jumped on the bandwagon. I suspect it was because I *finally* logged in and removed my status and long expired credentials. Because I’ve been permanently disabled and out of the job market for 10 years. Seems it was overdue.

But LinkedIn did NOT get the hint. So they are sending me job notices as well, and today they sent me a really juicy one. Payroll specialist for a local company I’ve heard is great to work for. This is a job I would be drooling over if I was even remotely capable of doing it. It still breaks my heart to not be able to work. I loved accounting and I loved working. I still miss it and probably always will. It is my visual impairment mostly that makes it impossible to do the job I used to do. So unless they find a cure to fix my eyes I’m out of the accounting game. And most other things that require seeing. Big Fat Sigh.

Don’t get me wrong. I am happy. Content and perfectly accepting of my life now. I just sometimes miss the old days, or at least parts of it. It’s fine. I’m fine. Everything’s fine! šŸ™‚

Anxiety, Disability, Exercise, Family, Food, Health, Multiple Sclerosis, Photos, Running, Stories

Week 18 marathon training – 7 more days!

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Let’s shake it up and start with the stats. This week I traveled a total of 9.51 miles on my feet and my banked marathon training miles are up to 499.2. If I had just gone for another short walk or run I could have hit 500! Oh well. This week.

So I had leg day at the gym on Sunday with my daughter. She’s been joining me at the gym, which has been a nice change. On weekdays we go after she gets home from school, so we have to walk to the bus stop to take the public bus. Unless we feel like walking the 2.5 miles, which on Tuesday we did not. So I counted the distance walking to and from the bus stop (0.7 mile each way) in my weekly miles because, hey, I used my legs so I figure it counts. If you disagree you can take it up with the manager. We were planning to go again to the gym on Thursday, but it was raining and neither of us felt like walking in that, so we skipped that day.

I’ve been doing my long runs on Saturday, but I had planned on volunteering for a local race Saturday morning. Sunday we had plans with family, so I knew that wasn’t going to be an option. So, I made sure to get my long run of 6 miles in on Friday instead. The weather has been cooling down here in Michigan, finally, so I was able to get my run done in the late afternoon, just before dinner time. It was a tad warm, but nothing like the hot summer days. I don’t miss those one bit. I loved this 6 mile run. I keep saying this, but I felt strong. Fast, even. And when I saw my overall average pace at the end, I realized it wasn’t just an illusion. I was speedy, relatively speaking. I’m not fast compared to a lot of other runners, but this was definitely the fastest I’ve been since I first started running. And the best part is that I wasn’t struggling to breathe, my knees weren’t screaming at me, nothing. Zero issues. I was rocking that sexy pace, Martinus!

I am super excited about this race. The taper has been really nice because I feel like it’s also freed up my brain and spirit to start really engaging more with life around me. To really relax body and soul instead of feeling like a running zombie. It’s still a little weird because you feel like if you’re not running, you are possibly losing fitness, but I know that’s not the case. Millions have gone before me in this endeavor and they swear by the taper. So I’m trusting the process. I’ll do some light running this week, maybe some easy strength exercises, and then Saturday we’ll head to the race Expo to pick up my packet. We’ll hopefully meet up with my cousin Zack, who is my guide runner for this race. We were never able to meet up for a training run together but we’ve talked through everything and I’m sure we’ll do just fine. Once I’m home from the Expo I’ll pack all my stuff, lay out Flat Marathon Mel with my clothes and bib so I can start the visualizing – I’ll take a picture to share with y’all – and then I’ll start the sleepless night before the big day!

Would you like to know what’s on my packing list? In no particular order, this is what I bring for a long race (don’t let anyone tell you running is a low maintenance sport, they are either lying or in denial):

  1. Garmin watch
  2. Cell phone
  3. Arm sleeves (look ridiculous but actually quite useful)
  4. Knee strap
  5. Bandana
  6. Hydration vest
  7. Running belt
  8. Clif Bloks (salted watermelon)
  9. Gu Roctane energy gel (sea salt chocolate)
  10. Protein bar (brand undecided but probably Clif)
  11. Hat
  12. Deaf Blind safety vest
  13. Guide vest for Zack
  14. Contact lenses
  15. Shoes (duh)
  16. Socks
  17. Sport bra
  18. Shorts (or pants depending on the forecast)
  19. Tank top (unless it’s below 40 degrees Fahrenheit I’m wearing a tank. The pits need to breathe)
  20. Deodorant
  21. Gold Bond Friction Defense (to prevent inevitable chafing)

I’m a list gal, tried and true. This list may look long and overwhelming, but it actually puts my mind at ease, because this is how I reassure myself I’m not forgetting anything. I loathe being unprepared. I just get so much anxiety thinking what I would possibly do if I went somewhere without the things I “need”. Yes, I’m addressing this with my therapist. It’s fine. I’m fine, everything’s fine!

In 7 days I’m going to be running another f**king marathon!! And it’s going to be amazing and I’m going to have so much fun. And when I cross that finish line I’ll get that medal and my family will be there to shower me with hugs and donuts (wink wink). Stay tuned, folks! It’s gettin’ real!

Food, Friends, Funny story, Low vision, Multiple Sclerosis, Stories, Visually Impaired

Restaurant leftovers

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My visual impairment is unnoticeable to others, usually. And then there are times you are trying to box up your own leftovers and it becomes comically evident that something isn’t right. I was out for breakfast with a friend and had ordered a delicious breakfast burrito. I was only able to eat two-thirds of it because it was enormous. So naturally, I asked the server for a box to take my leftovers home. No problem, he said. Then he quickly came back and set a foil box on the table. Gone are the days where they box up your leftovers for you, which I am a-okay with. However, I struggle a bit with doing it myself. I shoveled my leftover burrito into the box and then felt around, searching for the lid. I asked my friend, where’s the lid? With an amused smile, no doubt holding back a hearty chuckle, she said, “It’s inside the foil. You put your burrito on it. May I?” She says this as she’s motioning toward the box to offer to fix it for me. The lid was a transparent plastic that sat inside the foil box, and I had just placed my food on top of it, believing I was setting it directly on the foil. Thankfully the lid was upside down, so all she had to do was flip it over with the burrito into the foil dish and all was well.

After that slight debacle, the server came back and patiently waited the 38 minutes it took me to read the receipt and pay using the handheld computer thing. Because I am now a slow reader. It takes time for me to locate and properly identify letters and numbers, especially on a white screen. I want to be sure I get it right, especially when I’m authorizing someone to remove money from my bank account.

My visual impairment is both a loss of field of vision and an atypical color blindness, so I can’t really decipher things unless they are bright and highly contrasting colors. I read an article earlier this week that the color blindness is actually a common symptom that comes along with optic neuritis, which is what I have. Optic neuritis is very common with M.S., but it usually resolves after a short time period. In my case, it never did. It showed up in September of 2013 and took up permanent residence in my life. An unwelcome guest that I continually work to make peace with. Being so visually impaired really tries my patience most days, but this morning I was able to laugh at myself. It’s exhausting and utterly ridiculous and sometimes laughing at myself is all I can do. It happens a lot, to be honest. So I’m going to try to remember and share more of the stories here when they happen and hopefully, we can laugh together.

Family, Kids, Multiple Sclerosis, Running

Belated week 17 marathon training update

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I’m tapering folks. So scaling back on the miles has led my brain to check out a bit on other things. Or something like that. Let’s see, last week was week 17, and my long run was a measly 8 miles! Weekday obligations kept me from some of the shorter runs but I did manage to run on Thursday. I had to pick up another prescription at the pharmacy so I ran there and back for a total of 4.23 miles. When I run errands, I *literally* run errands.

Saturday I would have loved to run my 8 miles early in the day before it got too warm out, but my son was playing in a tennis tournament and I wanted to be there to watch him. It was a lot of fun watching him, but I’ll admit when the sun came out I was growing anxious about completing my 8 miler. I watched his first two matches and then had my husband take me home (the tournament was being held at a local high school) and then returned for the last match. So while the boys were finishing up with tennis, I was out hitting the pavement. I don’t remember much about this run, and I didn’t take notes afterwards, but nothing memorable happened, which is a good thing. No pain, no injuries, no real struggle at all. I’m still feeling strong.

Let me remind you, I’ve never been an athlete. I’ve never been remotely athletic. For many it comes naturally, or so it always seems to me. So this journey into running still really blows my mind. Ten years ago I was using a walker to walk from the couch to the kitchen. Now I’m running 8 miles on a hot day with ease? Little by little, I have become someone who does that. And it’s WEIRD. Because I’m still the same goofy girl inside. I just move a lot differently and am able to say yes to things that would have previously exhausted me. Hallelujah, thank you Jesus.

So week 17 recap is pretty minimal. Total weekly miles were 12.23, bringing my grand total marathon training miles to 489.69. As of today’s posting, The marathon is 10 days away and I am getting excited to slay this beast!

Bible Study Fellowship, Disability, Faith, Multiple Sclerosis, Photos, Running, Stories

Week 16 marathon training

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This week was a struggle. For reals. Not only was it my highest fatigue week, but I had appointments all week: neurology, therapy, infusion, and BSF (Bible Study Fellowship). The BSF was really the only one I was looking forward to, but with my fatigue being at such a high level, it was hard to enjoy. Can I just be really honest here? I have begun to forget why I signed up for this marathon. I’m so over it. Sure, it will be rewarding. I’ll be so glad I did it. No regrets. But I’m ready to get this thing done. So with that attitude, I was able to squeeze in some training.

Looking back, I don’t know how I managed to do this, but on Thursday afternoon – after I got home from my Tysabri infusion – I ran 2.5 miles to the local medical lab to get some blood work done, and then on the walk back home I swung by the pharmacy to pick up a prescription. Marathon training, disability style. Who says running is just for the young and healthy? This is tenacity at its finest, folks. Two workouts in one day. I got ‘er done.

Friday I rested, and then Saturday I ran some more. This photo on the right here is of a place I pass on my long runs. I never think to take a picture, but as I’m winding down my marathon training, it seemed like a good idea. This is a helicopter that was used during the Vietnam war and reminds me to be thankful I live in a country where I am free to run. God bless America.

So, since I’m officially tapering in preparation for race day, Saturday’s long run was “only” 12 miles. It’s a bit surreal, still, that ten years ago I was barely walking. And now I’m what? A runner? Able to casually run 12 miles and still be smiling at the end? To be up the next day NOT feeling sore and near-death? I’m fascinated with what the human body is capable of accomplishing. Fascinated that with slow and steady progression, it learns to handle hours of pounding on pavement. I am also astonished at the healing that has happened in my toes, ankle, and knees. And, I think most of all my heart. Oh, my heart. I am stronger than I ever thought I could be. I am ready to kick this marathon’s ass.

This week I traveled a total of 17.32 miles on my feet. Total marathon training miles, including the half marathon, is now 477.46. Three weeks until race day! I’m at the point of the process where I’m struggling to remember why I signed up for this, so I put a picture of myself running a race from last year on my phone’s lock screen. In the photo I’m sporting my bright orange deaf/blind vest so it’s a great reminder of my “why”. Why do I run? Put simply, because I CAN. Also, I could go on and on about how we can do hard things, and one of these weeks I might still do that, but for today we’re just going to leave it right here. I run because I can. Because God gave me the strength and led me to this place, and I’m going to honor Him by not giving up. He sustains me, truly. In life, and in running. All of it.

Multiple Sclerosis, Running

Fatigue week, enough said

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It’s Monday. I completed another week of marathon training. I do have a post started in my drafts folder. It has pictures but that’s about it. I’ll get to it, I promise. Last week was a big week! And my race is only 27 days away so the excitement is certainly building for me. However, my Tysabri infusion for M.S. is 3 days away, which means I am in a state of extreme fatigue right now. Mentally and physically. It hit me pretty hard over the weekend, and it was kind of a blessing that I had completed my long run earlier in the week, because I’m not sure if I would have been able to do it otherwise. So I’m hoping to be able to get that marathon update written and posted soon but I just can’t make any promises. I hope you all are healthy and well. Shalom šŸ™‚