Category Archives: Stories

Family, Food, Multiple Sclerosis, Running, Stories, Writing

Shall we chat about food and writing?

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Well, I spoke too soon about the dysesthesia (the burning sensation) on my back. I had a day’s reprieve, but it returned today. So that was kind of disappointing, but it’s fine. It just requires some wardrobe adjustments and limiting my upper body movement until it settles down. No biggie.

With my increase in energy I was able to make more meals at home this week! One of the downsides of my fatigue is that I’m not making meals for my family. This means they are eating crap processed food from the freezer, or Ramen (my daughter’s personal favorite), or fast food. So this week it has been really nice to get back to some better meals. Wednesday I made BLTs and onion rings. Thursday I made shredded chicken for tacos in the crockpot and it was so good (and plentiful) we had it again for dinner tonight. Tomorrow I’m planning to make pulled pork for sandwiches with coleslaw, and Sunday, meatloaf and mashed potatoes. Most would probably not call any of these meals healthy, but compared to what we eat when we are in mom’s-fatigued-crisis-mode, it’s a nice change. Also, it’s mostly been food my picky family all enjoys, so that’s always satisfying.

In addition to returning to healthy habits, I’m trying to get back to writing and working on my memoir. I had been plugging along pretty steadily on that when the fatigue hit. I knew writing a memoir would be challenging, but I’m finding it challenging in ways I didn’t expect. Through the magic of the interwebs I’ve connected with a lot of other memoir writers, however, and I am learning a ton. It’s been really great to bounce ideas off other people who can relate directly to the challenges I’m facing. They offer advice that they’ve learned along the way, and hopefully I’m able to offer them helpful feedback as well. I joined a weekly writer’s group to help keep me motivated. Just being a member of the group keeps me accountable and encouraged to not give up on the process.

You might find this interesting: I’ve read in several books on how to write memoirs, that writing a memoir is akin to training for a marathon. Which is humorous to me. I’ve trained for two marathons, and writing this memoir is by far the most challenging. At least with the marathons I had cut and dried plans to follow. But while “how to write a memoir” isn’t so cut and dried and that is frustrating to me, it means there’s a lot of room for creativity and I’m learning how fun that can be. For example, this past week in my writing group I took a stab at a “quick and dirty” shortened version of what I *think* the book will end up being about. I read it to the rest of the group and it was a lot of fun! It felt silly and free, and like it had sort of gotten me “unstuck” from where I was in the process. I still have so far to go, but I at least feel like I’m headed in a (mostly) forward direction. I will include my quick and dirty short version at the end here, in case you are curious. Keep in mind, it’s not to be read for critique, it was only written as an exercise in searching for a skeleton or outline to the book, which has been one of my ginormous struggles up to this point. I have a plethora of life experiences and stories in my head as well as on the page, and needed to find a way to filter out what actually belongs in this book.

Here is what I wrote this week:

Once upon a time there was a woman. She sat at home alone, feeling helpless and hopeless. She considered swallowing a bottle of Xanax to put an end to her suffering. (They said I should start with my lowest point.)

But! A desperate cry into the interwebs resulted in a friend coming over to save her from herself. She vowed never again to give up fighting.

Why was she so hopeless? What was she fighting? Multiple sclerosis yes, but more recently deafness, permanent vision loss. How will she come back from all this? What will rehabilitation look like?

She decides to start with the basics. Cleaning, cooking, connecting with family and friends. She developed new routines, and as things were scary or feeling new to her, her friends and family helped her to adapt. She overcame fears of boiling water and cutting apples, for example. She began walking around the block with her walker, and eventually walking with her cane to take her kids to the bus stop for school. She eventually was able to give up the cane until one day, she decided to see what would happen if she jogged for a couple of sidewalk squares.

Incredibly, she did not fall!! Bolstered by her victory, she worked and worked at building up the strength in her legs, taking solo trips around the neighborhood. When news came of a local 5k race happening, she decided to sign up to run it. (And here’s where we could write more about all the races she’s run and how she had to adapt, not ever having been a runner previously, and certainly never one with physical impairments.) Five years later, we see a woman running alone in the street, leaning hard to the left, hobbling her way to a makeshift finish line. As she sobs, she breaks through the caution tape and collapses into her husband’s arms. She has just run her first marathon, 26.2 miles, in just under 7 hours. She is elated, ecstatic to have finished on her feet, but vows never to run another one.

That ending is obviously incomplete, but it was a timed exercise so that’s where I had to leave it. I’ve always struggled with endings, so I still don’t know where to go with it, but I’ll figure that out (for those who know my story, if you have suggestions, I’d love to hear them!). If you could see the mess of chapters and paragraphs I’ve collected so far, you would appreciate that writing this quick and dirty tale is a major step forward in creating a plotline for my memoir. Beginnings seem to come naturally to me when I’m writing, but I get a little lost in my head through the middle and by the end I just don’t know how to “land the plane”. So that’s something I’m accepting about myself and working on. This writing project is proving to be a great lesson in grace and patience with oneself! For real.

And that is all, folks. It’s after 9, my brain has officially shut down. No more editing. This is what you get. Have a fabulous weekend!

Books, Disability, Faith, Family, God speaks, Kids, Low vision, Multiple Sclerosis, Stories, Visually Impaired

Learning to sit in the dark

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I recently read a book for book club called Learning to Walk in the Dark by Barbara Brown Taylor. Ever since, I’ve been thinking a lot about the dark, and my relationship to it. When I lost my vision and hearing I became very afraid of the dark. My limited field of vision leaves me wanting more. If I could just get more light in, maybe I could see the whole picture. With more light, maybe I could see it all. But that’s futile wanting. Even with full light, I still can only see fractions. I’ve had extra lighting installed everywhere in my home. Extra lamps in the bedroom, recessed lighting in the living room, under the cabinets in the kitchen. It does help when I’m trying to get work done and need to see specific things. Paperwork, food I’m preparing, the dust on the couch. But it doesn’t fix it. I’m still partially blind.

How long to you feed the longing for something you lost? How long do you entertain the yearning when you know it’s not coming back? Is the frustration worth it? Probably not. When is it time to give up the striving? Probably now.

I’m learning to sit in the dark. I woke this morning to get the kids up for school. I know they are teenagers and should be able to do this for themselves, but I enjoy it. I enjoy being around them in the calm of the morning. I know I’ll miss it when they are gone. This morning when I came downstairs to let the dogs out, I intentionally did not turn on the light in the kitchen. We have under-cabinet lighting, so it wasn’t completely dark. But it wasn’t completely light, either. It was nice. Calm. When I let the dogs outside, out of habit I flicked the outdoor light on and our deck flooded with artificial light. It was harsh, and as I looked out into the yard I noticed the moon hanging low in the sky. It was a near full moon, and it was majestic. So majestic, that I decided I needed to turn off the floodlight and let the moon shine in all its glory. I stood on the deck as the dogs ran around the yard and just absorbed the blend of early morning light and dark.

Normally I would have been trying to conjure up some profound thoughts in response to this moment, but today I just wanted to be. I just wanted to breathe in the morning, thank God for giving me the moon, and let that be enough.  Over ten years into this disability, I am still grieving my losses. I don’t think grief is a checklist to be completed. It ebbs and flows, and it never truly ends. But I am thankful that it has waned, and is not so soul-crushing as it used to be. I am learning. Learning to sit with the dark, look up to the sky for solace, and be okay. Because today, that is enough.

Disability, Exercise, Friends, Health, Low vision, Multiple Sclerosis, Running, Stories, Visually Impaired, Writing

Moving on…

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Wow. I knew I hadn’t posted in awhile but I didn’t realize it’s been nearly two months. I’ve been okay, really. I’ve just been focusing on a lot of other things. And I’ve still been writing in some capacity all along, because I am still the ME who lives and breathes for writing. Writing seems to be one of those things that actually gives me energy. Mental energy mostly, not physically. The running helps with the physical energy. Since it is winter in Michigan, I have struggled to run consistently, because I detest the treadmill, and running outside is neither safe nor desirable. Even when I can bundle up for warmth, I still have the ice and snow to think about. I walk out my front door after a good snowfall and it’s a sea of white, covering potential icy hazards. So I’ve been trying to get to the gym for treadmill running and strength training, but it’s been a bit sporadic.

Also, all the sleeping! With shorter winter days and limited sunlight, I feel like I’m not alone in this. Needing more sleep seems to be the trend, so I’m not blaming the multiple sclerosis for this one, though I do think it’s heightened. I’m definitely needing more sleep than usual. And this year, I’m just accepting that. It’s fine, I’m fine, everything is fine.

We lost a close friend to cancer last month, and that has motivated me to stop wasting time with my memoir. Because he was too young. Life is short and we are not promised tomorrow, so we need to cherish every moment. So I’ve been chugging away at my memoir a little teensy tiny bit every day. All the books I’ve read on writing memoir compare it to training for or running a marathon, which fortunately I’ve done! So I can compare the two, and I honestly believe writing this memoir is proving to be more difficult than training for a marathon. But I also think it will be more rewarding once I’ve completed it.

Writing memoir requires a lot of introspection, self-awareness, and emotional gymnastics. I’m comfortable with this, but it does exhaust me in surprising ways. So I’m learning – again – when I need to take breaks, and giving myself permission to do that. Hi, my name is Mel and I’m a recovering over-achiever. Most nights I try to go to bed with a to-do list for the next day, and very rarely do I tackle everything on the list. The excessive sleeping has been a huge hinderance to that, for sure. Some days I’m writing stories, other days I’m organizing my ideas and brainstorming, and still other days I’m reading about writing. But if I can give the memoir even 15 minutes per day, I’m calling that a win because it’s progress. Snail’s pace progress, but still progress.

So that’s kind of a snapshot of what I’ve been up to. Sleeping, writing, and sporadic exercise. What else, folks? I guess that’s all I’ve got for now, but I wanted to pop my head up and let you know I’m still around, and I’m doing well, overall. I hope the same is true for you. Shalom, my friends. Shalom.

Family, Low vision, Multiple Sclerosis, Stories, Visually Impaired

I’m a Human Viewfinder

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I stood in the aisle at Wal-mart, flooded by the harsh florescent lights above. Crafts to my left, kitchen goods to my right. I said to my sister, “Kari, I just have to say… I really hate not being able to see things.” And then the tears quickly started to fall from my eyes. She came over and wrapped an arm around me and said “I know. I mean, I don’t actually know, but I know how hard it is for you.” She held me for a minute, just knowing I needed that moment to process some of my never-ending grief. You have to let yourself move through it. It comes in waves, but thankfully doesn’t linger for long.

We had been shopping all day for Christmas gifts for our families and this was our last stop. I still had one gift to find for my husband and I was exhausted. Sure, my feet were sore, but I was more mentally exhausted than anything else. It’s tiring having to find things when you can only see a scattered portion of what’s in front of you. If you’ve ever been overwhelmed by the vast varieties of mayonnaise in a large supermarket, then you have a glimpse into my frustrations. Multiply that by 100.

I said to Kari, “it’s not like this at home. At home it’s easy; I feel like I can see everything.” And that’s not because I can physically see what’s there, but it’s because my brain knows. It knows because I live there and interact with every inch of every surface, every drawer, every cupboard. I know because I put it there. Unless someone moved it (or I did, and just forgot), I don’t have to wonder. I don’t have to move my eyes or head around to find things or to read labels. As long as the cans are where I put them last, I know where to find the soup from the beans.

At home, I don’t feel so slow. Out in the world, out shopping, I’m slow. And I am sure I look it. Strangers walking by might think, “Wow, she’s really taking her mayonnaise choice seriously.” No, I’m just trying to find the one I need out of the thousands in this Wall O’Mayo. I’m not conflicted about the decision; it just takes a long time to find and read the words on the labels when you can’t see most of the letters. In my world, patience has become a virtue I would not survive without.

My visual impairment is a permanent result of optic neuritis. Optic neuritis is a fancy term for inflammation of the optic nerves, and for me, it comes out of the grab bag of damage multiple sclerosis has left me with. It presents differently for everyone, but my particular case has left me with permanent blind spots and atypical color blindness. The blind spots are like thick, scattered clouds that impede more than half of my visual field. I’ve compared my vision to taking a completed 1000 piece puzzle and randomly removing 600 pieces. And then spilling water on it to mute the colors. The atypical color blindness means I have a difficult time distinguishing colors like blues, greens, reds, browns, etc. unless they are highly contrasting. This is why I often can’t see cracks in the sidewalk or the texturing on the white walls in my home. I lived in my current house for six years before I discovered the front facing was painted two different colors. The loss of visual field means I can’t see whole faces. I’ve hugged complete strangers thinking they were family members; I’ve stared blankly at friends I’ve known for decades. Again, patience has become a necessary virtue for me.

When I described my vision to a friend recently, she said it sounded like I was a human viewfinder. Which sounds a lot more fun than it really is, but I’ll take it for the laugh. It’s either that, or cry. I’ll take the former, always. Unless I’m at Wal-mart, I guess.

Funny story, Punky, Stories

My nights are dark and silent

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I had an odd experience this morning and used it for today’s writing practice. Enjoy!

The bedroom is dark. I’ve just removed my eye mask and stood up from my bed. I slowly creep my way to the bathroom, like a drunken sailor, and look at my watch. It’s 4:24. I turn on the closet light and sit on the toilet. I don’t turn on the bathroom light because it’s too much light and I don’t want to leave my sleepy state. I fear falling asleep on the toilet. I put my face in my hands as I relieve myself. I’m still so tired, but the bladder wins every time. Once I’m done, I wash my hands and slowly walk back to my side of the bed. I always love this part. You’re chilled when the air in the room hits your bare skin, until you climb back under the covers, still warm from when you left them minutes ago. Except when you reach to pull up the covers, instead of finding the fuzzy fleece, your hand touches a warm mass of fur. You are confused. You feel around the fur, it’s long, and it’s slowly moving up and down. It’s breathing. It’s your golden retriever, who in your brief absence from the bed has taken your place. You quickly shoo her out of the bed, where she knows she is not allowed. When you climb into bed you find your pillow is not laid horizontally as you left it, but vertically. Like a savage. And now you are just fuming with rage at the audacity someone had to alter your sacred sleeping space. Who knows? Maybe it was me. Maybe it was the dog. It doesn’t matter, I’m mad at the world and my heart is racing. I’m wrapped in this warm fleece blanket again, sans dog, and I need to find a way to get back to sleep, because the sun is still hours away from rising. And it’s Saturday, for Pete’s sake. Slow breathing, think of other things. It’s fine. Your body is comfortable again, in a relaxed state. Let your mind join in. Sleep will come.

That was fun to write, but I wasn’t sure how to end it. I’ve never been great at landing the plane. Practice, Mel. Practice. This is fun!

Daily Snippets, Deafness, Deep thoughts, Disability, Family, Friends, Health, Holidays, Low vision, Mental health, Multiple Sclerosis, Nonsense, Running, Stories, Visually Impaired, Writing

Some Friday Ramblings

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**Note, I started this post several days ago and didn’t finish it. I just didn’t feel like I was writing the way that I used to, or would like to, or “should”. All kinds of silly reasons to abandon a post, but whatever. I’ve been trying to hop back into the art of writing that I have loved, on and off, my entire life. After completing that marathon I was exhausted in so many ways and then lots was happening here at home that required my energy and attention, and then Thanksgiving, and on and on with the reasons/excuses for my absence here. I really desire to get back to regular blogging, regular writing. Lots of changes have happened with me over the last two years so I’m hoping “Writing Mel” is still alive here. I believe she is, and we are just dusting her off a bit. Bear with me, por favor. Gracias. Now back to the original post.**

I noticed when I logged onto WordPress today that they had a writing prompt; the question was “what will your life look like in three years?”. Which is interesting to me, because I was just hopping on here to tell you about a discussion I had with my husband recently that was along these lines. We were basically discussing whether we were content with our lives. And if asked that question, I would say that absolutely, I am content. However, if you had asked me 15 years ago if I would have chosen this life for myself, the answer would have been “hell, no.” I would never have chosen to be disabled and unable to work a job. Having multiple sclerosis, being deaf *and* half-blind, simply put – SUCKS. But I’m 10 years into this, and while it’s taken time, I’ve slowly learned to see (not literally, unfortunately lol) and be thankful for the benefits that have come from it. I’ve learned from these struggles. They have made me who I am today, and I love who that is.

I feel like I’m coming into a new season of life. I’m done training for marathons (for the next few years, at least). My kids are teenagers and can feed themselves (and prefer to, actually). The dogs are pretty low maintenance. So now I’m at a point where I’m learning how to rest. I’m learning how to be okay with sitting still. For as long as I can remember, I have had trouble with sitting still. Not that I physically can’t, but that when I do, there is a general unease felt underneath my skin and deep in my spirit. Like I’m “supposed” to be doing something. I’m often noticing my shoulders are hunched up and I need to consciously pull them back down.

I was actually discussing this general unease with a friend the other day, and she expressed how completely opposite she was from me in this regard, and we had a laugh. She seemed like she was saying she rests too much, and finds herself procrastinating. Sounds a bit like we would do well if we came more to the other’s side and met in the middle. But then where would be the fun in that? I love the variety I see in all of my friends and family members. It’s funny to me the things we experience and think are normal for everybody, when really we are all so different in so many ways. It makes life a lot more interesting, and brings us closer together as we support each other in our areas of strength and weakness.

So back to the season of rest. That’s where I am currently. I still have an ongoing list in my head of all the things I want to *do*, but I’m trying to be more kind to myself. While I’ll never regret running that second marathon, I will admit that I made the commitment without full consideration of my limits; physically, mentally, emotionally. So you could say I’m taking a break. Ish. A semi-break. Evaluating what I value most, and then easing those things back in. It feels a little like riding an inner tube on a lazy river. I’m enjoying it so far.

And that, my friends, is a little taste for you of the rambling that goes on in my brain on the daily. You are welcome. See you next time.

Faith, Family, Multiple Sclerosis, Photos, Running, Stories

Marathon 2.0 is in the books!!

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I so badly want to tell you all about this marathon, but it’s 9 days post-race and I am still processing. The mental fatigue is real. I have really struggled to put pen to paper and that is why I decided to just give you this brief update and save the full rundown for another time. So for now I will leave you with this:

This race marked a 10 year anniversary and celebration of how far I’ve come since becoming permanently disabled. I have healed in so many ways mentally, emotionally, and physically over these past 10 years. I didn’t realize it when I signed up for this race, but it has served as a symbol of that healing. Completing this marathon marked a tangible victory representing a thousand little intangible victories that have happened over the past decade. I am truly grateful to all of the family and friends who have supported me through everything. All the difficult moments where I didn’t know if I could stand, literally and figuratively. I would not be here today without them. Drawing from my faith in Jesus Christ and the support from so many others, I was able to complete this second round of marathon training and ultimately, the epic 26.2 mile race at the end.

My husband and kids, and my fabulous cousin and guide runner Zack. I’m in a wheelchair because you get special treatment if you can’t stand up at the finish 😉

Now my only real goal for this second marathon was to beat my first marathon time, which was 6 hours and 59 minutes. I had trained for and run a half marathon at the end of May, so I took that into account when deciding where to jump into a marathon training plan. My official marathon training then began in June and I trained for an additional four and a half months. In that time I ran and walked 306.2 miles for a total time of 76 hours, 17 minutes, and 7 seconds. As for the race itself? I finished my last 26.2 miles in 6 hours, 20 minutes, and 4.8 seconds. And if you are having a difficult time wrapping your head around all that? Now you know why I’m still processing 9 days later. It was so much work and I doubted myself from start to finish, but I stuck with it and I completed my goal. No, I crushed my goal. Obliterated it. I am proud of myself for completing this monumental challenge and I may do it again someday, but for now I’m going to hunker down and rest. An aggravating part of me is really itching for the next big goal but I’m giving myself the time I know I need in order to decompress and recharge.

Thank you for following along with me on this marathon running journey. It has been truly unforgettable. Good night and God bless.

Deafness, Disability, Exercise, Faith, Family, Low vision, Multiple Sclerosis, Photos, Running, Stories, Visually Impaired

The countdown continues

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Flat Marathon Mel

And above we have your girl, Flat Marathon Mel. This is basically what I’ll be wearing tomorrow. Unless I change my mind on the way and switch out accessories. I’m going by the forecast so we’ll see if the weather cooperates. It’s looking to be around 50 degrees and dry. The rule of thumb is to dress for 20 degrees warmer because your body heats up while you’re running. I’ve always followed this rile and it works, but it does feel a little like torture in the beginning when you are standing in the cold feeling drastically underdressed. But I know my body, and I heat up quite a bit, maybe more than 20 degrees, so I believe the tank and shorts should be perfect.

I seem to have forgotten why I signed up for this race so I’ll be spending the rest of the night reminding myself. It’s gonna be fun. It’s gonna be worth it. And God has and will give me the strength to keep going when it gets hard. This race represents all of the ways Jesus has healed me physically, mentally, and emotionally over the past 10 years. This one isn’t about proving i can do it. This one is about enjoying the growth process and celebrating the outcomes. This race for me is about proclaiming victory. We can do hard things when Jesus Christ is our strength.

Lord Jesus, please be with me extra close tonight as I pretend to sleep and tomorrow as I pound the pavement for 6 or 7 hours. May you get all the glory for this one. I couldn’t do it without you.

And also thanks to my cousin Zack, who agreed to be my guide runner without hesitation! He enthusiastically agreed and I’m looking forward to our extended time together. This is such a unique opportunity to share. It’s truly a gift, and I’m excited.

Now it’s off to bed folks! Wish me luck!

Anxiety, Disability, Exercise, Family, Food, Health, Multiple Sclerosis, Photos, Running, Stories

Week 18 marathon training – 7 more days!

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Let’s shake it up and start with the stats. This week I traveled a total of 9.51 miles on my feet and my banked marathon training miles are up to 499.2. If I had just gone for another short walk or run I could have hit 500! Oh well. This week.

So I had leg day at the gym on Sunday with my daughter. She’s been joining me at the gym, which has been a nice change. On weekdays we go after she gets home from school, so we have to walk to the bus stop to take the public bus. Unless we feel like walking the 2.5 miles, which on Tuesday we did not. So I counted the distance walking to and from the bus stop (0.7 mile each way) in my weekly miles because, hey, I used my legs so I figure it counts. If you disagree you can take it up with the manager. We were planning to go again to the gym on Thursday, but it was raining and neither of us felt like walking in that, so we skipped that day.

I’ve been doing my long runs on Saturday, but I had planned on volunteering for a local race Saturday morning. Sunday we had plans with family, so I knew that wasn’t going to be an option. So, I made sure to get my long run of 6 miles in on Friday instead. The weather has been cooling down here in Michigan, finally, so I was able to get my run done in the late afternoon, just before dinner time. It was a tad warm, but nothing like the hot summer days. I don’t miss those one bit. I loved this 6 mile run. I keep saying this, but I felt strong. Fast, even. And when I saw my overall average pace at the end, I realized it wasn’t just an illusion. I was speedy, relatively speaking. I’m not fast compared to a lot of other runners, but this was definitely the fastest I’ve been since I first started running. And the best part is that I wasn’t struggling to breathe, my knees weren’t screaming at me, nothing. Zero issues. I was rocking that sexy pace, Martinus!

I am super excited about this race. The taper has been really nice because I feel like it’s also freed up my brain and spirit to start really engaging more with life around me. To really relax body and soul instead of feeling like a running zombie. It’s still a little weird because you feel like if you’re not running, you are possibly losing fitness, but I know that’s not the case. Millions have gone before me in this endeavor and they swear by the taper. So I’m trusting the process. I’ll do some light running this week, maybe some easy strength exercises, and then Saturday we’ll head to the race Expo to pick up my packet. We’ll hopefully meet up with my cousin Zack, who is my guide runner for this race. We were never able to meet up for a training run together but we’ve talked through everything and I’m sure we’ll do just fine. Once I’m home from the Expo I’ll pack all my stuff, lay out Flat Marathon Mel with my clothes and bib so I can start the visualizing – I’ll take a picture to share with y’all – and then I’ll start the sleepless night before the big day!

Would you like to know what’s on my packing list? In no particular order, this is what I bring for a long race (don’t let anyone tell you running is a low maintenance sport, they are either lying or in denial):

  1. Garmin watch
  2. Cell phone
  3. Arm sleeves (look ridiculous but actually quite useful)
  4. Knee strap
  5. Bandana
  6. Hydration vest
  7. Running belt
  8. Clif Bloks (salted watermelon)
  9. Gu Roctane energy gel (sea salt chocolate)
  10. Protein bar (brand undecided but probably Clif)
  11. Hat
  12. Deaf Blind safety vest
  13. Guide vest for Zack
  14. Contact lenses
  15. Shoes (duh)
  16. Socks
  17. Sport bra
  18. Shorts (or pants depending on the forecast)
  19. Tank top (unless it’s below 40 degrees Fahrenheit I’m wearing a tank. The pits need to breathe)
  20. Deodorant
  21. Gold Bond Friction Defense (to prevent inevitable chafing)

I’m a list gal, tried and true. This list may look long and overwhelming, but it actually puts my mind at ease, because this is how I reassure myself I’m not forgetting anything. I loathe being unprepared. I just get so much anxiety thinking what I would possibly do if I went somewhere without the things I “need”. Yes, I’m addressing this with my therapist. It’s fine. I’m fine, everything’s fine!

In 7 days I’m going to be running another f**king marathon!! And it’s going to be amazing and I’m going to have so much fun. And when I cross that finish line I’ll get that medal and my family will be there to shower me with hugs and donuts (wink wink). Stay tuned, folks! It’s gettin’ real!

Food, Friends, Funny story, Low vision, Multiple Sclerosis, Stories, Visually Impaired

Restaurant leftovers

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My visual impairment is unnoticeable to others, usually. And then there are times you are trying to box up your own leftovers and it becomes comically evident that something isn’t right. I was out for breakfast with a friend and had ordered a delicious breakfast burrito. I was only able to eat two-thirds of it because it was enormous. So naturally, I asked the server for a box to take my leftovers home. No problem, he said. Then he quickly came back and set a foil box on the table. Gone are the days where they box up your leftovers for you, which I am a-okay with. However, I struggle a bit with doing it myself. I shoveled my leftover burrito into the box and then felt around, searching for the lid. I asked my friend, where’s the lid? With an amused smile, no doubt holding back a hearty chuckle, she said, “It’s inside the foil. You put your burrito on it. May I?” She says this as she’s motioning toward the box to offer to fix it for me. The lid was a transparent plastic that sat inside the foil box, and I had just placed my food on top of it, believing I was setting it directly on the foil. Thankfully the lid was upside down, so all she had to do was flip it over with the burrito into the foil dish and all was well.

After that slight debacle, the server came back and patiently waited the 38 minutes it took me to read the receipt and pay using the handheld computer thing. Because I am now a slow reader. It takes time for me to locate and properly identify letters and numbers, especially on a white screen. I want to be sure I get it right, especially when I’m authorizing someone to remove money from my bank account.

My visual impairment is both a loss of field of vision and an atypical color blindness, so I can’t really decipher things unless they are bright and highly contrasting colors. I read an article earlier this week that the color blindness is actually a common symptom that comes along with optic neuritis, which is what I have. Optic neuritis is very common with M.S., but it usually resolves after a short time period. In my case, it never did. It showed up in September of 2013 and took up permanent residence in my life. An unwelcome guest that I continually work to make peace with. Being so visually impaired really tries my patience most days, but this morning I was able to laugh at myself. It’s exhausting and utterly ridiculous and sometimes laughing at myself is all I can do. It happens a lot, to be honest. So I’m going to try to remember and share more of the stories here when they happen and hopefully, we can laugh together.