Category Archives: Anemia

Thoughts on Trauma

Trauma. It sounds like an alarmist word. Until you find that it’s exactly the right word to describe what you’ve been through. You didn’t know it at the time, because you were a child and the adults in your life were telling you this was normal. That you had a good life. That you were just overreacting. It was probably just those teenage hormones lying to you about how bad things were. But hormones don’t lie. People do.

And children grow up and start remembering. Often not in clear memories, but in physical responses to situations bearing resemblance to what you went through. That part of your brain remembers, and it’s trying to protect you. Don’t ignore it. Get help. Because while the danger is no longer out there,  it is now within you, internalized and threatening to repeat all the same behaviors that were normalized for you growing up. The rage attacks, the love bombing, the blame shifting, the gaslighting, the confusing and conflicting messages. You’ve got to end the cycle. Work on you. You are the only one you have control over.

All these terms, these are buzzwords. But what they are to me are light bulbs and with them someone finally turned the lights on when I’ve been stumbling around in the dark for years, decades even. The lights are on and now I’m standing in this maze and trying to find my way out. It’s not easy. But I have  cheerleaders, faithful supporters standing to the side shouting directions, whispering life giving encouragement. I’m going to get out of this maze. I must. I am a trauma survivor.

All of that I wrote, previously. But I feel it needs a little more explanation. See I’ve been living in a constant state of anxiety for as long as I can remember. And late last year I discovered that wasn’t normal. The racing heartbeat, the tremors, the cold sweats, the nightmares, the panic attacks. These were symptoms of complex ptsd. I sought help from a trauma therapist back in November and I’ve been seeing her ever since. Twice a week, sometimes three, to work through and properly process the trauma I’ve lived through. My therapist uses a method called EMDR, eye movement desensitization and reprocessing, and it’s fascinating. I had stumbled across it while doing my initial research into what I was experiencing and it’s turned out to be exactly what I needed. Because traditional talk therapy is difficult when you have trouble with your memory. I won’t go in to the specifics of it, because you can look it up for yourself, but I will say it has worked it’s magic rather quickly. In four short months I am far less triggered by every day stressors. I’m finding it easier to relax my shoulders. I’m sleeping through the night (most of the time). The nightmares have waned considerably. I’m getting better at responding as opposed to reacting.

So we’ve stopped the bleeding, so to speak, but I still have a lot of healing to do. My mind is still replaying toxic messaging, I’m still doubting my every decision, my self-worth. I’m still desperately seeking validation every where I go. But I am on the mend, I’m getting the help, and that’s what matters most.

This is a big reason why I have not posted here on the blog since January. Other reasons are related to my physical health. Some of it covid related, some of it related to being a pre-menopausal woman. I think I’ve been anemic for some time, who knows how long it’s been building, but it ended with a trip to the ER the day after my birthday and my first ever blood transfusion, hurray! So I’m seeing doctors, I’m taking medications, I’m on the mend. However, this has all wreaked havoc on my energy levels and my ability to run, which *KILLS* my pride and frustrates me to no end, but I’m trying to remember this is just a season and it won’t last forever. I will get back to running, and I’ll update y’all when that happens (which I hope will be soon, since I have races on the calendar calling my name).

Three units short

I went to see the hematologist today.  He seemed pretty confident that my anemia is a result of many years of horrifically heavy periods. I’ll spare you the details,  but will say they must be cause for concern if they have led to permanent loss of red blood cells.  As I was educated today,  those are the ones you need for energy,  and I happen to be three units short.  A healthy person should have at least twelve,  and seven is real bad.  I have 8.7.

Of course,  I have been taking iron pills for a couple weeks now, so it’s possible that number has come up.  They took more blood today to see.  When I told the doctor I was taking the iron pills with my meals because they upset my stomach, he didn’t seem very optimistic.  He said it’s best to take them on an empty stomach so the body absorbs them before they are digested. I’m not real crazy about that,  but if that’s what it takes then I guess that’s what I’ll do.  Worst case scenario, I’ll have to get the iron via infusion, but I’m a regular at the infusion center so that doesn’t bother me.

I should hear back from the doctor with the test results and his recommendation for treatment within the next day or so. Beyond that,  I’ll see the hematologist next month for follow-up and more blood work. He wants me to see my gynecologist as well to see if we can get those monster periods under control. (Mom, don’t say hysterectomy.  I know it’s a possibility.)

I was remarking to Mike while we were waiting that I don’t think I would know what to do with myself if I were healthy.  It’s just become such a normal thing for me,  to be dealing with health issues. But – with God’s strength I am still here, still living, still thriving, and still finding joy in the simple things. Still Mindy.

Add blood disease to the list…

I’ve been really tired lately. For the past couple of months, actually. I just kind of assumed it was circumstancial, or due to the m.s., or a combination of both. It would make sense. Fatigue and balance issues are par for the course with m.s., and we have the new puppy, and we’ve had lots of travelling and family events with the holiday.  So I had been telling myself that’s what it was, and it would ease up.

Only it wasn’t easing up, and I was starting to get very discouraged. I just couldn’t get back to that place of feeling like you have sufficient energy to move. And no amount of caffeine or sleeping seemed to help.

I went to see a new neurologist yesterday, and shared all of my concerns with her. She said I’m doing all the right things (though I am under orders to stop climbing on chairs) and I’m on the best m.s. treatment with my monthly Tysabri infusions. She ordered a gang of blood tests, since I hadn’t had one in quite some time.

She called this morning with some of my test results (while we were at the pediatrician with my son, who has been complaining of headaches and was up last night with headaches and vomiting. She was still waiting on further test results, but the one she was most concerned with was my vitamin b levels (or hemoglobin, or something). Whatever “they” are, they should be at 12. Mine are at 8, which means I am very anemic. Their words, not mine. The lucky thing is that my primary, who my neurologist was advising me to see regarding the anemia, is located on the second floor of the building my children’s pediatrician is in. So Mike called to see if they could see me right then and they were able to! So I left Mike with Luke and took the elevator to the 2nd floor. The primary doctor ordered more blood testing to get a better sense of what might be causing the anemia, prescribed some iron pills, and is setting me up to see a hematologist.

What FUN. After everything I went through last year with the trip to Mayo Clinic, hospital stays, plasmapheresis, etc., I was really hoping for some time off from doctors and testing. That’s clearly not happening.

I’m not exactly looking forward to more medical drama – not to mention the frustration and guilt I feel for needing my husband to take time off work to drive me everywhere – but I am somewhat relieved to learn that I wasn’t just making this up. I wasn’t just becoming a lazy person. There is a reason for this fatigue, and the headaches and dizzy spells. More importantly, there are solutions. Before today I didn’t know the first thing about anemia, but I know now that it is treatable, and depending on the cause, can sometimes even be reversed. That’s a hell of a lot more than I can say for multiple sclerosis. And compared to all of the mess I’ve been through with m.s. for the last 5 years, and the mess I go through daily with hearing loss, anemia looks like a walk in the park.

Now I just have to find the park!