I had my monthly infusion today! Also, it’s my 26th wedding anniversary. I was telling my infusion nurse that I should probably be more excited about the latter, but it’s hard to feel like celebrating when you can barely move your legs. So celebration will just have to wait until my energy returns. Thankfully my husband is very understanding, and also not super into these types of annual celebrations anyway. He’s just happy to be able to spend any time with me, and it doesn’t have to be on the exact day. What can I say? We just aren’t romantic people. It works for us.

When I came home from my infusion I considered all the things that need to be done: laundry, cleaning bathrooms, clerical household tasks – told them all they can wait – and then ate a robust and delicious salad and took a solid nap. The weather was beautiful today and I really wanted to go for a run but that has to wait too. Because the effects from the infusion aren’t immediate. I’m hoping I feel up for running tomorrow. Even if it’s at a turtle’s pace, that’s fine because that happens to be my specialty.

I’ve been doing a lot of reading to keep me occupied while dealing with this damn fatigue. I have a really hard time sitting still, so reading makes me feel like I’m “doing” something, even if I’m not always fully comprehending what I’m reading. I finished a couple books this past week and am onto a few more. One of the books was about running – Let Your Mind Run by Deena Kastor – and I absolutely loved hearing about what goes through her head while training for and running major races. I’m a big fan of all of the female professional runners and have read several others’ memoirs. I was surprised that I actually felt a kinship with Deena as I read her stories of dealing with fatigue and injury. I felt like I’ve learned a lot of those same lessons while dealing with MS, and maybe that’s why I’ve come to love running so much. Even though I’ll never be considered fast, the challenge of running with MS will always drive me. I have a 10k coming up in June that I definitely need to start getting ready for, and I’m hoping to run a half marathon in the fall. Reading Deena’s book brought back my own memories of training, and I realized how much I miss it. I’m just praying that my health and legs can remain stable and allow me to continue.