Today I used up too many spoons folding laundry and fixing lunch, so I had to make the decision to stop part way through and cross some things off today’s to-do list.
Spoons? What?! No, I’m not having a stroke. I’m referring to the Spoon Theory. I was trying to explain this Spoon Theory to my therapist this week, because she had never heard of it either. This article explains it much better than I can: https://www.goodrx.com/health-topic/mental-health/spoon-theory. Basically, it is a way that many people living with chronic illness conceptualize how to manage our energy levels. Each day we wake up with a set number of spoons, and as we go through our daily tasks, we use up those spoons.
I can say that for me, I never know how many spoons I’ll wake up with each day. My spoon rations (I.e. energy levels) are unpredictable and sporadic. I often have moments in the day where I feel energetic, but it hardly ever lasts very long. That happened today. I woke up feeling pretty well, considering the excessive fatigue I’ve been struggling with over the last month or so. I folded a load of laundry, started on a second load, and then noticed the time and realized I needed to eat. I went down to the kitchen and fixed myself a breakfast taco. After eating, I went back upstairs to finish with the laundry and just couldn’t. I had to sit down. Lie down, actually. Like it states in the article linked above, everyday tasks demand extreme effort. Getting dressed, brushing my hair and teeth, all cost daily “spoons”. I forget that fact and tend to overdo it. Repeatedly. I may never learn. But that’s why I’m grateful to have loving family members and friends who graciously remind me of my limitations (something like, “you have M.S., remember?”) and give me permission to rest (I know, I can give myself permission, but sometimes it helps to hear it from someone outside yourself.)
So. It’s only 2:30 pm and I’m thinking about what I have on my plate for the rest of the day, and how many spoons it will take to clear that plate. I am attending a sporting event for my son tonight and I know that’s going to require several spoons, so I’m resting in order to reserve my energy for that. Because even if I have enough spoons to get there, it’s likely I won’t have enough to pay attention to what’s happening or carry on conversations. With cochlear implants, having conversations uses up a lot more spoons than it did before I was deaf. Same with the vision. It takes a lot more effort to get around than it did before. Thankfully, my husband will be there to support me. That is always reassuring. But that act of evaluating my daily activities and how it will likely affect my energy levels is a daily thing. I think about it all. The. Time.
I’m not sharing all of this to whine, and I hope that’s clear. I just thought you might be interested in hearing a bit about what my daily life is like living with this chronic illness. As I told my neurologist earlier this week, managing M.S. is like a full-time job. Seriously. And I’ve had it “easy” for a long time now, so I suppose I was due to have some difficult days. I’ll get through this. Lord knows I’ve done it before and with His help, I’ll do it again. Slowly but surely, one day at a time.
So with that I say – take a break, reader! Go outside, listen to fun music, take a nap. And happy Friday… have a wonderful weekend.